Jeff just spoke to our neighbor and dear friend. Our mutual friend/mom of our son's friend is having her surgery today. D was "out of wait" (as so beautifully expressed by Marie.) At 40, she was wheelchair bound and raising her son on her own. She went up to Stanford with her sister and had multiple blockages. We'll get the story later, but for those who pray, please keep D in your thoughts today.
Do not fear...for those who are afraid they may miss the bus on CCSVI, this is not going away. If anything, time will bring better knowledge, better techniques, and more doctors on board. As Dr. Cooke said to me at Stanford...in 5 years this may well be considered standard operating procedure. It may involve ENTs/oral surgeons/plastic surgeons and take the MS patient's physiology into account....removing wisdom teeth, reshaping the tissue in the neck, combining balloon techniques and stents depending on the individual. There may be dietary/nutritional/supplemental programs as well as continued blood thinning. All of this is subjective, because it's all in the beginning phases.
So, for those so inclined...pray for increased knowledge and wisdom for the doctors going ahead with this paradigm. Pray for scientific seeds to fall on fertile soil. Pray that we'll find more benefactors. And pray for wisdom in your own personal situation...whether you can wait and watch, or whether now is the time. But trust me, the praying works.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09