CureIous and WRWH,
I agree with some of your sentiments CureIous about the insurance companies. You would like to think a fair product for a fair price. I'm not against commpanies making a profit, just a fair one. One does grow weary with the jumping through the hoops with the insurance. I can think of a couple of other words that have the initials BS.
Alex is to check with my insurance. I am a little concerned that it is BCBS in another state. Since I had so many things up in the air, I felt it was better to wait until September. I just need a date in order to make flight arrangements. I think we MSers are beating Dr. Dake's door down. Hope he is not overwhelmed with the onslaught. Just need to get some other docs on board. And our many thanks to Cheer for getting the ball rolling (providence - I think was the word she used and I agree) and Marie for sniffing out some of the research and to the brave souls that have indeed blazed the trail. Does anyone know the CPT code and diagnosis code Dr. Dake's office is using? If anybody does, they can PM me. My sister is a medical coder with a group of doctors and she asked me. She also mentioned if MS was the diagnosis code, I could expect my insurance to refuse payment.
My GP is aware of me checking CCSVI out and is willing to do followup. Had not approached it with my neuro. I originally had an appointment with him today , but had gotten a letter from his office recently saying I needed to reschedule because of his recent surgery. I learned on Wednesday that he had died. Which saddened me, because of the neuros I have used so far, he was my favorite even though we did not agree on MS being AI. He thought it was, I didn't.
Will be checking back with Alex next week. And yes CureIous, those of us of average means are somewhat stuck in the middle. Might be necessary for us to use one of our CD's set aside for retirement, but at least we have that. Besides, who knows what tomorrow may bring? To borrow from an old Rolaids commercial - how do MSers spell relief? Hopefully, STENTS. We shall see. Thank God for Dr. Dake and pass the ammunition I mean information. OK I know I'm corny.