This Is MS Multiple Sclerosis Community: Knowledge & Support

Very, very good!

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Great job everyone --

Worldwide grass roots !!

This assures there is a demand to investigate this thoroughly and well everywhere. It cannot be brushed under the rug!

great work everyone!

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Hi Frank

Thanks for your suggestion! It's good to have someone experienced on board.
It was also my plan to wait for the results of Bologna and to knock again at the Wikipedia door. Let's work together.

I propose to discuss the concept of the German Wikipedia article on the German speaking CCSVI forum announced in http://www.thisisms.com/ftopict-7832.html I'll open a thread there. So, others could also contribute.

Cheers,
ibex

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Patientensicht.ch | Venous Multiple Sclerosis Hypothesis / CCSVI – de – fr

@ibex:
Sounds good, read you there...

--Frank

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Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

Hi

Since last Sunday CCSVI is mentioned on the German Multiple Sclerosis Wikipedia article.
Multiple Sklerose > Chronische cerebrospinale venöse Insuffizienz

After a discussion with one of the main authors of the MS article, he decided to write himself about CCSVI.

CCSVI is also present in other languages:
CCSVI@Wikipedia English
CCSVI@Wikipedia Español
CCSVI@Wikipedia Suomi
CCSVI@Wikipedia Nederlands

ibex

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Patientensicht.ch | Venous Multiple Sclerosis Hypothesis / CCSVI – de – fr

I am really glad for this development, it reads well. Thank you so much for making this effort!

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

DITTO to Marie's post.

The article is very concise - might be a good one to print out when handing CCSVI info to doctors because it also has the references listed.

Thank you for your efforts
Sharon

I think this bit is a little awkward in English:

Being a physical flow problem is expected that posture health practices and ergonomics at work could reduce the consequences of the reflux. For example, if jugulars are blocked, it could be expected better outcome trying to stand as much as possible in order not to use them[4], but again, no studies exist to date.

Trying to use your words, this might be better:
Being a physical flow problem, the possibility of practising good posture and working ergonomically could reduce the consequences of reflux. In the case of blocked jugulars, the condition could be improved by standing as much as possible in order to avoid using the jugulars[4], but again no studies exist to date.

And, I would add sleeping inclined or sitting up, to the standing a lot suggestion, as it is lying down that really uses the jugulars.