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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby chrishasms » Mon Jul 20, 2009 8:32 am

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Last edited by chrishasms on Sun Dec 06, 2009 12:04 pm, edited 1 time in total.
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Postby Loobie » Mon Jul 20, 2009 8:45 am

Chris,

I have lower spine lesions also and was surprised that my azygous was the best of the three. I don't want to predict ANYTHING, but I was thinking that as well. My first lesions were all in the lower spine area. I only say that to note that you may be surprised as I was that the azygous was clean. I mean most of my disability is "attributed" to those lesions, but who the hell really knows?
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Postby LR1234 » Mon Jul 20, 2009 8:52 am

When are you getting tested Chris? Are you all booked in already?:)
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Postby chrishasms » Mon Jul 20, 2009 8:58 am

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Postby LR1234 » Mon Jul 20, 2009 9:00 am

Ok, Well I hope you manage to get the cash together soon:)
I am interested to see what stenosis you have (if you have them of course)

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Postby peekaboo » Mon Jul 20, 2009 9:18 am

Although I seem to be the only one so far to have an azygous vein...I have to tell you that there are many intracerebral veins that can be effected by a jug malfunction.

www.ajnr.org/cgi/content-nw/full/23/9/1500/F3

if y0u look at Fig3 it is pics of MR venograms of the craniocervical region. On my pic w/ the occlusion of my left jug I also occlusion of the inferior petrosal sinus (e). Also have daysons fingers and who know what areas of the body they correspond with. no my picture did not show all the veins as in this sample it look more like a pair of goggles and the two jugs leading form them. I am hoping after my follow up w/ Dr. D that these things might look better.

EDIT: that the above are flowing properly
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Postby skydog » Mon Jul 20, 2009 10:45 am

Chris, and anyone else that might be even slightly uncomfortable in tight places I found closing your eyes for the whole procedure really helps. You have to be awake and work with the tech for good results. Close them before going in and do not even for a instant open them in the tube. Wait til your out to open them. Worked great for me. Cheers, Mark
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Postby Arcee » Mon Jul 20, 2009 10:54 am

Mark, I did exactly the same thing. And I was just going to post elsewhere that I found the machine at Stanford a lot louder than what I am used to at home.
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Postby mrhodes40 » Mon Jul 20, 2009 10:56 am

The point of the Russian paper was that jug or BC blockage could reflux into the spinals......... This stuff reaches further than it seems it might my thinking has evolved there based on that paper.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby LR1234 » Mon Jul 20, 2009 12:13 pm

I also do that in the tube...(close my eyes and dare not open them once)
It really helps and I am totally fine. I always open them when I know I am done and they are about to pull me out and even in that short last few seconds I start to panic, so keep 'em closed!
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Postby Artifishual » Mon Jul 20, 2009 1:56 pm

I figure with my bladder issues and back pain that my (pending I even have them) are in my back and not my neck, but so did Lew so who freakin knows?

Chris does your insurance cover the MRV? i'm thinking mine will? BCBS
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Postby chrishasms » Mon Jul 20, 2009 6:13 pm

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Postby peekaboo » Mon Jul 20, 2009 6:18 pm

Brag Brag Brag :wink:
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