It turns out that Steve's neurotologist has been well aware of chronic cerebrospinal venous insufficiency in MS for a long time. This is a short blurb on his background from his clinic's website: "After five years of residency training at The University of Texas Medical School at Houston, he completed his fellowship in Otology/Neurotology - Skull Based Surgery at Baylor University Medical Center in Dallas." But CCSVI treatment is new, and he's a virus/bacteria/fungus/parasite/heavy metals/methylation kind of doctor (not a mainstreamer/not an alternative doctor either). He walks his own self-cut path and does controversial things like prescribe Valtrex to little kids with Autism. He prescribes Valtrex, Amantadine, and the antibiotics on the Vanderbilt Protocol to Steve and has prescribed him oral chelation in the past (now just reduced oral glutathione). What would he say about the prospect of Steve going to Stanford? He told Steve that he should absolutely have the treatment if indicated by the imaging, and he's very curious to see the result.
The appointment was disturbing. The vestibular testing performed on Steve revealed an actual organic change to certain elements of his balance that go along with the actual functional decline in Steve's balance that we have observed for at least two months. The doctor said the changes most likely reflect infection with a recent flu that has gone chronic in Steve. Yep, I recall when he got sick this late Spring/early Summer, and it drug on for at least a week with a sore throat and lousy feeling---not a strong immune reaction, but untypical for him. Anyway, Dr. X prescribed Tamiflu and advised to wait for a month following the end of the drug course before going to Stanford. He also advised to give him a 5-day pulse of Tinidazole now and then again one week following the Stanford surgery---that's pretty much on course with his existing pulse schedule on the Vanderbilt Protocol. Well, that's all fine---that falls in line with the time-frame I believe Dr. Dake is working with right now, considering the backlog of patients waiting for CCSVI treatment. I hate the waiting, but it's dictated by the realities, plus it is a relief to have a particular culprit to blame for Steve's recent and marked decline. Enemies, enemies, enemies!!!!!
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."