For the record, below is a summary of the background information I sent to Stanford for review by Dr. Dake:
I was diagnosed with RRMS in 1987. My first MS related event was an attack of optic neuritis in the left eye in 1981. I first met with with the doctor who eventually diagnosed me in 1986 because of problems with double-vision. I declined diagnostic testing at that time because of the expense and because there were no treatment options for MS back then. A year later, after additional episodes of double-vision and vertigo, I returned to complete the tests for a diagnosis (evoked potential and MRI).
I have had recurring and gradually worsening problems over the years related to body fatigue, heat sensitivity, bladder and bowel problems, nausea, sexual impotence, migraines, lower body weakness, diminishing physical and mental stamina, nystagmus, poor left-eye vision and muscle control, gait instability, and reduced senstation below the knees in both legs. Cognitive and short term memory weakness first started to affect my job performance in 1993, and I eventually stopped working in 2005 because of these problems.
I have injected Copaxone daily since 1998. I have had several courses of prednisone over the years, as well as a 7-month course of monthly methylprednisolone infusions in 2007. (I now have osteopenia.)
In addition to Copaxone, I take 480mg of verapamil nightly for migraine prevention, and 4.5mg of low dose naltrexone before bed (started September of 2008). I also take several over-the-counter supplements, like acetyl l-carnitine, calcium, Vitamin D, Vitamin E, EPA/DHA, acidophilus, etc.
I removed all diary and gluten from my diet in 2008 based on BBD recommendations in hopes of slowing down progression.
I was first classed with SPMS in 2000, and I am rated 4 on the EDSS scale ("early cane"). I have exercised regularly since high school, and continue with a 1/2hr free weight routine 4 times a week at a local spa. I've studied and practiced Tai Chi for several years to help with balance.
I'm a 53 yo male.
o CD from MRI exam 10/2008
o MRI Written Summary 10/2008
o MRI Written Summary 11/2004
o UCSF MS Center Second Opinion Regarding Treatment Options 9/2008
o Neuropsychological Assessment dated 10/17/2005
o Neurologist's Letter to Summarize MS History - 1/2006