If we can ever connect with Dr. Dake, we're going to Stanford. He tried to call us 3 times while we were at Mass Saturday evening, one time was on my mobile phone which I always turn off in church.
In the meantime, I've been pondering on iron chelation, finding rx drugs like M30, HLA20, and deferiprone, but also finding highly touted supplements for iron chelation like EGCG (in green tea extract) and circumin. Steve's already taking circumin, and I just ordered some EGCG.
My question is this---does EGCG have the same diuretic effect as tea? That's a critical factor in Steve's life at this time. Does anyone here have personal experience taking EGCG? Thanks, Joyce
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."