Hi Erika and others,
yesterday me and my girlfriend came back from Dr. Simka. He did the Dopler USG on her and 2 other patients on that day.
Here is the report:
Color-doppler sonography of jugular and vertebral veins
Right internal jugular vein is stenosed in its middle portion: the vein in this area is narrowed to 3 mm.
There is pathologic valve/septum in the junction of left internal jugular vein with brachiocephalic vein. This structure significantly impaired venous outflow from the internal jugular vein. No pathologic reflux has been detected in both internal jugular veins. There is normal flow through vertebral veins, both in the supine and sitting positions, and there is no
reflux in these veins. Interpretation of the examination There are significant stenoses of the both internal jugular veins. These strictures can be defined as chronic cerebrospinal venous insufficiency and might be related to the diagnosed multiple sclerosis.
Besides we discussed following topics:
Surgery:
e.g. that there is a 3rd option (open surgery) which means (from my understanding) taking spare veins from legs and replace the narrowed in neck. This is perhaps also an option for removing unwanted stents.
There is a possibility to pay for the surgery and based on the price list we saw in the ambulance it is cca. 1000 EUR for ballooning, 1800 EUR one stent, 2750 EUR two stents. The insurance theme (for Slovakia) was already discussed here. He said that there are limits for a year and this year is probably full. But in January there will be new list. EDIT (Do not take this as definite; the best way is to contact him and ask)
His first CCSVI surgery should be next week.
Blood-thiners (Anticoagulants): Not sure if I understood well, but there is an oral blood-thinner in US and in EU we use Heparin, which is not very expensive. I was said that Heparin is not given orally which leads to more stable dosing, what should prevent any complications like bleeding....
CCSVI and MS: Dr. Simka believes that CCSVI is the main cause of MS. He is also in contact with other Drs (Dake, Zamboni,...) He may have the final results from Dr. Zamboni but cannot distribute them.
USG: I was watching the procedure and saw the narrowed veins on both sides, but I cannot prove that as I don`t have the right knowledge. My GF only reported later, he pushed a little bit harder than she thought he will.
Trial: He said he is preparing a clinical trial with control group. My question was if there will be a "placebo" surgery. He said no, because it is unethical and the control group will only be monitored as it is.
Supplements:
Diosmin: Of course hard to say about its efficacy but it is supposed to help in legs - hard to say in neck.
He mentioned Quercetin by himself as a possible supplement.
Our next steps: Try to do USG in Kosice (city in our region) with report from Dr. Simka and see what the specialists think about it.
Recently I found that there is already a nice info about CCSVI on Wikipedia...
http://en.wikipedia.org/wiki/Chronic_ce ... ufficiency
I don`t remember anything else at the moment...I may write later something more.
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