This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Cat,
it was nice.
if you want to survive in this country you have only two possibilities:
to stay strong or to kill yourselff.
NO WAY I kill myself so I stay strong!

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Rici - the first patient in Poland had his procedure this morning. He only sent short message: "It was OK, without pain."
I am sooo happy for him, for Dr. Simka and for his team!
Just great!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

That's great, Erika. Do you know what was done? Balloon only, or anything else?

I also would like to know. I hope to know more tomorrow.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Erika when you know it could you give me some more info please of what procedure has been done, baloon or stent, at what hospital and more or less how much it costed?

I'm back from visit at Dr Simka's office.Doppler usg showed bad blood flow and venous valves not working well on both sides of my head.Now he will do MRV and then stents-he said baloon is useless in my case.
and Ricci is fine-probably he will be home tomorrow!

Wow! So happy for you, and for all those in Poland and nearby, who now have an option. Best of luck, and please keep us posted.

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

kinga - so glad that Dr. Simka was able to help you.

This is what Dr. Dake has found in his patients -

Take care,
Sharon

Go Dr. Simka!!!!! Very excited for our eastern European friends. Erika...your day will come, dear heart.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

thank You all! that's what I love about Americans-You really care about other people!
I'm entering my road to be ms-free,doppler usg was my first step ,but I'm so happy there is road at last! Wish You all the best!

Hi everybody!
I had very successful three days. I am almost sleeping now.
I met Rici - he is really fine, he has got one stent in his left jugular.
I will write more later, oh, I had my MRV of jugulars in Poland on Wednesday, I had MRI of brain and spine in Slovakia today.
I am very happy and very tired.
Dr. Simka and Dr. Ludyga are excellent!
Good night!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Great to hear from you Erika! Your persistence has been a blessing for you -- so happy to know that things are turning around for the better.

Sharon

Congrats, Erika, I'm so glad you didn't give up! BTW, who is Dr Ludyga?

Erika I'm so glad You had MRV done! you getting closer to your goal..I'm keeping fingers crossed for you!

This is very important question.
Dr. Ludyga is the doctor who is doing the procedure in Katowice. He did the procedure to Rici.
Rici talks about him with really big respect.
We should remember this name.
At least people in Europe.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse