CCSVI and Slovakia, Europe

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ErikaSlovakia » Thu Oct 15, 2009 12:24 am

Hi Cat,
it was nice.
:D if you want to survive in this country you have only two possibilities:
to stay strong or to kill yourselff.
NO WAY I kill myself so I stay strong!
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Location: Slovakia, Europe

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Postby ErikaSlovakia » Mon Oct 19, 2009 8:45 am

Rici - the first patient in Poland had his procedure this morning. He only sent short message: "It was OK, without pain."
I am sooo happy for him, for Dr. Simka and for his team!
Just great!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1117
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Location: Slovakia, Europe

Postby Rokkit » Mon Oct 19, 2009 8:49 am

That's great, Erika. Do you know what was done? Balloon only, or anything else?
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Postby ErikaSlovakia » Mon Oct 19, 2009 9:10 am

I also would like to know. I hope to know more tomorrow.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1117
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby DIM » Tue Oct 20, 2009 12:46 am

Erika when you know it could you give me some more info please of what procedure has been done, baloon or stent, at what hospital and more or less how much it costed?
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I'm next!

Postby kinga » Tue Oct 20, 2009 10:30 am

I'm back from visit at Dr Simka's office.Doppler usg showed bad blood flow and venous valves not working well on both sides of my head.Now he will do MRV and then stents-he said baloon is useless in my case.
and Ricci is fine-probably he will be home tomorrow!
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Postby Arcee » Tue Oct 20, 2009 10:59 am

Wow! So happy for you, and for all those in Poland and nearby, who now have an option. Best of luck, and please keep us posted.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby Sharon » Tue Oct 20, 2009 11:16 am

kinga - so glad that Dr. Simka was able to help you.
he said baloon is useless in my case.

This is what Dr. Dake has found in his patients -

Take care,
Sharon
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Postby cheerleader » Tue Oct 20, 2009 11:20 am

Go Dr. Simka!!!!! Very excited for our eastern European friends. Erika...your day will come, dear heart.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby kinga » Tue Oct 20, 2009 11:30 am

thank You all! that's what I love about Americans-You really care about other people!
I'm entering my road to be ms-free,doppler usg was my first step ,but I'm so happy there is road at last! Wish You all the best!
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Postby ErikaSlovakia » Thu Oct 22, 2009 12:12 pm

Hi everybody!
I had very successful three days. I am almost sleeping now.
I met Rici - he is really fine, he has got one stent in his left jugular.
I will write more later, oh, I had my MRV of jugulars in Poland on Wednesday, I had MRI of brain and spine in Slovakia today.
I am very happy and very tired.
Dr. Simka and Dr. Ludyga are excellent!
Good night!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1117
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby Sharon » Thu Oct 22, 2009 12:20 pm

Great to hear from you Erika! Your persistence has been a blessing for you -- so happy to know that things are turning around for the better.

Sharon
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Postby Rokkit » Thu Oct 22, 2009 1:05 pm

Congrats, Erika, I'm so glad you didn't give up! BTW, who is Dr Ludyga?
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Postby kinga » Thu Oct 22, 2009 1:13 pm

Erika I'm so glad You had MRV done! you getting closer to your goal..I'm keeping fingers crossed for you!
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Postby ErikaSlovakia » Fri Oct 23, 2009 4:02 am

Rokkit wrote:Congrats, Erika, I'm so glad you didn't give up! BTW, who is Dr Ludyga?

This is very important question.
Dr. Ludyga is the doctor who is doing the procedure in Katowice. He did the procedure to Rici.
Rici talks about him with really big respect.
We should remember this name.
At least people in Europe.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1117
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

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