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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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BBE
 Post subject:
PostPosted: Fri Feb 05, 2010 3:56 am 
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Joined: Sat Sep 05, 2009 3:00 pm
Posts: 63
Location: Slovakia
Simple translation of BNAC Newsletter from Dr. Zivadinov in Slovak language. Please share to others...
http://www.upnito.sk/subor/0548eb5e77fa ... d032e.html
or
http://www.megaupload.com/?d=SF098VGU


Last edited by BBE on Fri Feb 05, 2010 2:08 pm, edited 1 time in total.

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BBE
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PostPosted: Fri Feb 05, 2010 2:07 pm 
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Location: Slovakia
Posted new links. I hope it will work now...
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ErikaSlovakia
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PostPosted: Sat Feb 06, 2010 12:50 am 
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Joined: Wed Jul 29, 2009 3:00 pm
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Location: Slovakia, Europe
BBE wrote:
Posted new links. I hope it will work now...

Thank you, the second works with me. I need it for members on Slovak and on Czech MS Forum. I sent them only the English version yesterday.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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ErikaSlovakia
 Post subject: procedure in Slovakia
PostPosted: Thu May 06, 2010 4:19 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
The first "liberation" procedure was done in Slovakia in Bratislava
on March 29, 2010!
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/

Erika
The article is in Slovak language.

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Last edited by ErikaSlovakia on Thu May 06, 2010 5:53 am, edited 1 time in total.

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BBE
 Post subject:
PostPosted: Thu May 06, 2010 5:37 am 
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Joined: Sat Sep 05, 2009 3:00 pm
Posts: 63
Location: Slovakia
...Erika probably wanted to post these links:
Slovak forum
http://szsm.szm.sk/forum/viewtopic.php? ... &start=580
and page of "Slovak radiology society"
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/

Anyway it is great news. Thanks. :)

EDIT: You can read some info in English about The National Institute of Cardiovascular Diseases here http://www.nusch.sk/en/
It is not just a private clinic anymore.
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thisisalex
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PostPosted: Thu May 06, 2010 4:12 pm 
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Posts: 218
Location: Hungary
Great success dear neighbours! :)
congrats
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frodo
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PostPosted: Thu May 06, 2010 11:27 pm 
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Can they be contacted in English?

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You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info
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ErikaSlovakia
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PostPosted: Fri May 07, 2010 12:15 am 
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Location: Slovakia, Europe
thisisalex wrote:
Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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ErikaSlovakia
 Post subject:
PostPosted: Fri May 07, 2010 12:19 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
frodo wrote:
Can they be contacted in English?

I am almost sure. These people are young - the hospital is hight quality, I would say most of people speak English there.
I remember reading them my Doppler results from Dr. Simka last September in English. All of CCSVI information are in English so they simply must speak English.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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thisisalex
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PostPosted: Fri May 07, 2010 12:30 am 
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Joined: Wed Dec 02, 2009 4:00 pm
Posts: 218
Location: Hungary
ErikaSlovakia wrote:
thisisalex wrote:
Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika


We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...
Erika, do you have an exact name to get in contact with?

thank you very much!
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ErikaSlovakia
 Post subject:
PostPosted: Fri May 07, 2010 12:32 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
thisisalex wrote:
ErikaSlovakia wrote:
thisisalex wrote:
Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika


We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...
Erika, do you have an exact name to get in contact with?

thank you very much!

I will PM you.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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 Profile  
 
ErikaSlovakia
 Post subject:
PostPosted: Sat Jun 12, 2010 12:11 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
There were 7 procedures done in Slovakia.
Patients get stents and some of them also ballooning.
Some of the patients report pain after the procedure. They say it is much better after 7 days - these patients got 2 or 4 stents. This reminds me Dr. Dake.
The first procedure was done on March 29, 2010.
An angiologist and an IR are involved. I heard nothing about electritians.
So, plumbers are working on it. :)
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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ErikaSlovakia
 Post subject:
PostPosted: Sat Jun 26, 2010 5:16 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Top
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thisisalex
 Post subject:
PostPosted: Sat Jun 26, 2010 5:19 am 
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Joined: Wed Dec 02, 2009 4:00 pm
Posts: 218
Location: Hungary
ErikaSlovakia wrote:
So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika


wow
Erika, do you have more information bout the Czech trial? i only did know about the slovakian one

thanks
alex
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ErikaSlovakia
 Post subject:
PostPosted: Sat Jun 26, 2010 6:14 am 
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Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
thisisalex wrote:
ErikaSlovakia wrote:
So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika


wow
Erika, do you have more information bout the Czech trial? i only did know about the slovakian one

thanks
alex

I am in contact with some czech patients as well.
I just know they do it here: http://rdg.angio.cz/Intervencni-neurolo ... e/Personal
I do not have any official information.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Top
 Profile  
 
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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