CCSVI and Slovakia, Europe

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby BBE » Fri Feb 05, 2010 2:56 am

Simple translation of BNAC Newsletter from Dr. Zivadinov in Slovak language. Please share to others...
http://www.upnito.sk/subor/0548eb5e77fa ... d032e.html
or
http://www.megaupload.com/?d=SF098VGU
Last edited by BBE on Fri Feb 05, 2010 1:08 pm, edited 1 time in total.
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Postby BBE » Fri Feb 05, 2010 1:07 pm

Posted new links. I hope it will work now...
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Postby ErikaSlovakia » Fri Feb 05, 2010 11:50 pm

BBE wrote:Posted new links. I hope it will work now...

Thank you, the second works with me. I need it for members on Slovak and on Czech MS Forum. I sent them only the English version yesterday.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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procedure in Slovakia

Postby ErikaSlovakia » Thu May 06, 2010 3:19 am

The first "liberation" procedure was done in Slovakia in Bratislava
on March 29, 2010!

http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/

Erika
The article is in Slovak language.
Last edited by ErikaSlovakia on Thu May 06, 2010 4:53 am, edited 1 time in total.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby BBE » Thu May 06, 2010 4:37 am

...Erika probably wanted to post these links:
Slovak forum
http://szsm.szm.sk/forum/viewtopic.php? ... &start=580
and page of "Slovak radiology society"
http://www.angio.sk/sk/skleroza-multiplex-a-ccsvi/

Anyway it is great news. Thanks. :)

EDIT: You can read some info in English about The National Institute of Cardiovascular Diseases here http://www.nusch.sk/en/
It is not just a private clinic anymore.
BBE
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Postby thisisalex » Thu May 06, 2010 3:12 pm

Great success dear neighbours! :)
congrats
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Postby frodo » Thu May 06, 2010 10:27 pm

Can they be contacted in English?
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Postby ErikaSlovakia » Thu May 06, 2010 11:15 pm

thisisalex wrote:Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Thu May 06, 2010 11:19 pm

frodo wrote:Can they be contacted in English?

I am almost sure. These people are young - the hospital is hight quality, I would say most of people speak English there.
I remember reading them my Doppler results from Dr. Simka last September in English. All of CCSVI information are in English so they simply must speak English.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby thisisalex » Thu May 06, 2010 11:30 pm

ErikaSlovakia wrote:
thisisalex wrote:Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika


We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...
Erika, do you have an exact name to get in contact with?

thank you very much!
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Postby ErikaSlovakia » Thu May 06, 2010 11:32 pm

thisisalex wrote:
ErikaSlovakia wrote:
thisisalex wrote:Great success dear neighbours! :)
congrats

Thank you, Alex!
I hope you will have it soon in Hungary!
Erika


We are working on it.... but facing some problems, especially with neurologists trying to stop it. For the surgery they signature is needed. Do you think our medical team could get in contact with the slovakian doctors to get some good advices? it would be really nice...
Erika, do you have an exact name to get in contact with?

thank you very much!

I will PM you.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Fri Jun 11, 2010 11:11 pm

There were 7 procedures done in Slovakia.
Patients get stents and some of them also ballooning.
Some of the patients report pain after the procedure. They say it is much better after 7 days - these patients got 2 or 4 stents. This reminds me Dr. Dake.
The first procedure was done on March 29, 2010.
An angiologist and an IR are involved. I heard nothing about electritians.
So, plumbers are working on it. :)
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Jun 26, 2010 4:16 am

So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby thisisalex » Sat Jun 26, 2010 4:19 am

ErikaSlovakia wrote:So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika


wow
Erika, do you have more information bout the Czech trial? i only did know about the slovakian one

thanks
alex
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Postby ErikaSlovakia » Sat Jun 26, 2010 5:14 am

thisisalex wrote:
ErikaSlovakia wrote:So far, 8 procedures have been done in Slovakia and 12 procedures in Czech Republic.
Both countries continue.
Erika


wow
Erika, do you have more information bout the Czech trial? i only did know about the slovakian one

thanks
alex

I am in contact with some czech patients as well.
I just know they do it here: http://rdg.angio.cz/Intervencni-neurolo ... e/Personal
I do not have any official information.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1124
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

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