Reminder

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Reminder

Postby peekaboo » Sat Aug 01, 2009 10:35 am

I just want to remind all that according to Zamboni's preliminary findings that having the CCSVI intervention improvement varies in time.

Go to page 75 stating recovery can take 4days to 4 months and further down the page was a Z test stating lower limb recovery as much as 6 months. and also mostly RRMS

We are not a patient society. We take pills for instant headache relief...microwave a potato so it will cook in minutes not hours in the oven. Fast food ...You get what i mean. so we pioneers must keep this in mind and we should not give up. Patience patients :wink:

How long would it take for a lesion to repair and regain most of its normal functioning? It can take hours to burn down a house but days/months to rebuild.
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Re: Reminder

Postby cheerleader » Sat Aug 01, 2009 10:40 am

peekaboo wrote: Patience patients :wink:

How long would it take for a lesion to repair and regain most of its normal functioning? It can take hours to burn down a house but days/months to rebuild.


You're so right, Holly! I'm impatient, too...really wanted to see lesion healing on Jeff's 2 month MRI. I wanted tangible proof of what Jeff was experiencing. But this healing isn't just about lesions going away, it's about improved oxygenation to the brain and better venous drainage. You're all in this for the long haul.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Sat Aug 01, 2009 12:33 pm

Thanks for this Holly. I of all people need to read as much stuff like this as possible. I love the way you always bring our feet back down to earth when you sense us being afloat. You're the bomb!
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Postby mrhodes40 » Sat Aug 01, 2009 4:50 pm

Well done! I agree big time! And coudin is like --I don't know at but something bad---

I am going incommunicado---

off to see the wizard tomorrow, appt on tuesday. My computer officially was taken off life support so I am reluctantly using Bill"s crabby machine--it hates me and the keyboard is like a pounding a manual typewriter-- under duress because I miss you all-my peeps!. :wink:

but this is probably the last comment for a while...

toodle-ooo :D :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby peekaboo » Tue Aug 11, 2009 8:06 am

BUMP
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Postby Jamie » Tue Aug 11, 2009 4:24 pm

We have to also remember what lesions are. Sclerosis. I.e. scars.

They will probably never go away.

Although after hicy some of Mel's shrunk and her two black holes healed.

I think healing is more plasticity, ongoing damage stopped so the brain can re-route.

Re-routing won't be automatic either, one has to work at it which I know isn't easy.
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