Hi all, final pre-op report.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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CureIous
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Hi all, final pre-op report.

Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:08 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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IHateMS
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Post by IHateMS »

Good luck Mark.

I take it the 1/24 who did not have stenosis is Island Girl, who has celiac or gluten ataxia.
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skydog
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Post by skydog »

Sounds like you and I have something more in common than the spelling of our first name. High up in the jugs stenosis I am quite familiar with. Are the veins fairly straight forward or twisted as mine were, and are they flat for a measurable distance or more or less kinked as mine were? I truly hope it goes easier with experience for Dr. D, as I presented a difficult procedure having such sharp bends where the veins should take a nice S curve. Are you getting both sides done? Is he going to do anything with the lower stenosis? Best to you and the team tomorrow. You are in the best care there is at Stanford. Peace and Health, Mark
Plant a BIG Garden Live in the Moment
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Needled
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Post by Needled »

Mark, Here's to free-flowing veins! Best wishes with the procedure tomorrow. Please touch base with us when you can.
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bestadmom
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Post by bestadmom »

Good luck tomorrow,Mark.
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cheerleader
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Post by cheerleader »

Wow....this has been quite a quick ride for you, Mark. Jeff and I send good thoughts to you for your procedure tomorrow, and to Marie and Sharon getting their checkups. We're still in shock....
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Sharon
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Post by Sharon »

Mark - get a good nights sleep tonight. We will be waiting to hear from you after surgery.

Good information on how to get copies of the CD's --thanks for posting.

You wrote
Also some stenosis in same veins about the collarbone area.
I had something similar. Do you get a stent for both the left and the right?

Take care,
Sharon
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Quest56
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Post by Quest56 »

Hi, Mark,
Here's wishing you a good night's rest, and smooth sailing tomorrow...

You're insights into the process are really useful. My turn's coming mid Sept, so I'm taking notes (especially appreciate your comments about getting copies of the CD's).

All the best...

--Tracy
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:07 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:07 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:06 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:05 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:05 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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Post by CureIous »

:)
Last edited by CureIous on Sat Oct 03, 2009 2:06 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
ErikaSlovakia
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Post by ErikaSlovakia »

Hi, Mark!
I am sending you positive energy! I am sure it will go well.
Good luck again!
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