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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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CureIous
PostPosted: Mon Aug 03, 2009 4:45 pm 
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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:08 pm, edited 1 time in total.

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IHateMS
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PostPosted: Mon Aug 03, 2009 5:01 pm 
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Good luck Mark.

I take it the 1/24 who did not have stenosis is Island Girl, who has celiac or gluten ataxia.
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skydog
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PostPosted: Mon Aug 03, 2009 5:16 pm 
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Sounds like you and I have something more in common than the spelling of our first name. High up in the jugs stenosis I am quite familiar with. Are the veins fairly straight forward or twisted as mine were, and are they flat for a measurable distance or more or less kinked as mine were? I truly hope it goes easier with experience for Dr. D, as I presented a difficult procedure having such sharp bends where the veins should take a nice S curve. Are you getting both sides done? Is he going to do anything with the lower stenosis? Best to you and the team tomorrow. You are in the best care there is at Stanford. Peace and Health, Mark

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Needled
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PostPosted: Mon Aug 03, 2009 5:37 pm 
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Mark, Here's to free-flowing veins! Best wishes with the procedure tomorrow. Please touch base with us when you can.
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bestadmom
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PostPosted: Mon Aug 03, 2009 5:57 pm 
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Good luck tomorrow,Mark.
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cheerleader
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PostPosted: Mon Aug 03, 2009 6:53 pm 
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Wow....this has been quite a quick ride for you, Mark. Jeff and I send good thoughts to you for your procedure tomorrow, and to Marie and Sharon getting their checkups. We're still in shock....
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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Sharon
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PostPosted: Mon Aug 03, 2009 7:28 pm 
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Mark - get a good nights sleep tonight. We will be waiting to hear from you after surgery.

Good information on how to get copies of the CD's --thanks for posting.

You wrote
Quote:
Also some stenosis in same veins about the collarbone area.

I had something similar. Do you get a stent for both the left and the right?

Take care,
Sharon
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questor
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PostPosted: Mon Aug 03, 2009 8:59 pm 
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Hi, Mark,
Here's wishing you a good night's rest, and smooth sailing tomorrow...

You're insights into the process are really useful. My turn's coming mid Sept, so I'm taking notes (especially appreciate your comments about getting copies of the CD's).

All the best...

--Tracy
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CureIous
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PostPosted: Mon Aug 03, 2009 10:31 pm 
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:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:07 pm, edited 1 time in total.

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CureIous
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PostPosted: Mon Aug 03, 2009 10:34 pm 
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:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:07 pm, edited 1 time in total.

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CureIous
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PostPosted: Mon Aug 03, 2009 10:36 pm 
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:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:06 pm, edited 1 time in total.

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CureIous
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PostPosted: Mon Aug 03, 2009 10:41 pm 
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:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:05 pm, edited 1 time in total.

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CureIous
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PostPosted: Mon Aug 03, 2009 10:44 pm 
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Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1157
Location: Riverside, CA
:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:05 pm, edited 1 time in total.

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CureIous
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PostPosted: Mon Aug 03, 2009 10:48 pm 
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Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1157
Location: Riverside, CA
:)

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


Last edited by CureIous on Sat Oct 03, 2009 3:06 pm, edited 1 time in total.

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ErikaSlovakia
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PostPosted: Tue Aug 04, 2009 12:35 am 
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Hi, Mark!
I am sending you positive energy! I am sure it will go well.
Good luck again!
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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