Hi everyone, sorry no pretty pictures this time, (what?!), but did want to at least make a note of my most recent visit to the neuro's office fwiw.
At our latest consult a week or so ago, I mentioned to him about another EVP (evoked potentials) test, since we had an established baseline back in 2008, which confirmed , (at that time) my right eye was slower in response than the left, and that eye indeed was the first indication that anything was amiss back when I had my first bonafide flareup.
This of course is pretty standard issue for many of us as a first presenting symptom, something that drives you into the doctor when you wake up and your eye is turned into your nose seemingly overnight.
Anyways wasn't expecting much other than whatever the truth is, and I got it today, the eye is stable. That's it. No major fireworks, nothing concrete to prop up CCSVI, unless one considers from the outset, as I did, that stabilization is the goal, and any improvements beyond that are "gravy".
Well, so far mission accomplished, the nerve responses on the right eye are exactly where they were at the first test. In fact the nurse was quite excited to tell me that lol.
Symptom wise, there just really isn't anything there that makes me say, "oh there goes the ON again". No pains behind the eye, no more flashes of light or jittery tracking problems, definitely no turning-inwards but that hadn't been an issue since the first episode anyways.
Stable. This is good. No drugs either, that's even better, but to reiterate everyone else in here that "made that plunge", that is a highly personalized decision and against the advice of every doctor involved in this, FYI. I'm hopeful that at this point, with the blood flow stabilized, the reflux minimized and/or eliminated, my immune system not always on the attack (presumption there), MRI's showing stable, EVP stable, it's time to shift into neutral and coast, but with an eye on the road ahead and another on the rear view, just in case.
The graph is a piece of paper that makes squiggly lines, it doesn't embellish, nor does it have any placebo effects, it just is