I hope the rash is better. How soon before going to see Dr. Dake did you start the Coumadin? Will you be able to stop if all looks well in October?
I saw my GP yesterday and thought I'd mention CCSVI since he may have to monitor me "when" I go to Stanford. Well, his first reaction was pure skepticsm and doubt. He started rambling about risks and strokes, blah, blah, blah! I remembered what Cheer said about not reacting defensively and I just sat back and offered some reading material. By the time I left he was kinda excited and said he was headed to a meeting and was planning on sharing the info. He also said he was going to talk with my cardiologist (I have low blood pressure) and get his thoughts too.
Reading about your cautious neuro made me feel more comfortable with my own neuro's reaction. I am choosing to keep him in the loop, and maybe change his perspective. Maybe my GP will have a more open mind too? You never know!
I'm so glad you continue to feel good
Thanks Rhonda! Just a reminder it was Rhonda who led me here! You did well with your docs, the evidence will speak for itself, it's a matter of getting them to look at it in the first place. I prefer the peer pressure approach, "well everyone ELSE is on the bandwagon, did you miss it perchance?" lol. JUST KIDDING.
It IS exciting because most doc visits are pretty straightforward, and you garden variety GP who treats people inserts drug A into problem B for result C or tells people to exercise more and stop smoking. Sad but true. Few get a chance like this to participate in a ground breaking study on a chronic disease course, that actually DOES something they can see without looking under a microscope. I'm excited that they are excited!
My feeling is they don't deviate from the standard of care, like my neuro, but behind closed doors they are very excited, and curious. Curious is a good thing!
EDIT: to answer the q's about coumadin, the coumadin starts post-op. The standard is to 5mg at first then 10mg then test and see. Takes awhile for the body to regulate and get to an even keel. Most people will yo yo up and down, this is to be expected. My suggestion to him was to retest today, which I did, then see what is what on Friday. Readings will fluctuate on a daily basis until it gets to that nice idle speed so my suggestion to him was maintain present course, retest today, then see what the average looks like. Reason being, since the antibiotic, specifically THAT antibiotic, elevates the INR readings, and said antibiotic will be finished off Sunday, to make an adjustment now, then stop the antibiotic on Sunday, will result in even more yo-yo effect next week when I get tested. So today from my POV, just making sure it's not going through the roof into the high 3's or 4's. If it is then definitely would want a short term adjustment for safety. I'm more worried about being killed in a car crash going to get groceries than this, but caution is warranted in any case. Especially when age factors in, and I mean those that are closer to senior age need to be MORE careful in their monitoring. Remember, there are people that have been on coumadin for 20-25 YEARS.