dlynn wrote:Oh CureIous, I'm so sorry, this must be a difficult time for you. Life sure does throw us curve balls.
But it's good to hear you're still going strong.
peekaboo wrote:Just heard from CureIous' good friend Don who tells me that he left Op Prep at 4:30pm the op will be roughly 2hrs and recovery about 3hrs. He will be getting double jugs way up high and another set by the shoulder.
CureIous wrote:Good grief, was sitting outside with the dog enjoying the warmth and almost forgot it was August 3rd!
Six years ago today life changed for the good, and so far to the permanent. Last saw the neuro like 2 years ago or something so I guess that answers that.
The 4 stents are there but don't notice them nor had any follow up MRV's since 2012 I think. Don't take aspirin anymore, haven't had MS drugs since 08, definitely no MS flareups, improvements realized shortly after the procedure are still stuck, well I would say the improvements improved, then leveled out.
So at this point, I know there is residual brain damage, scar tissue, black holes that will most likely always be there like a hidden tattoo, but with MS most of the day-to-day grind involves symptoms affecting the body and mind. And I just don't have any I can point at and say, "definitely MS".
Just moving on with life, youngest son who was in the belly when the stents went in is starting kinder next week. Just blows my mind, because I am really truly THERE for all of it, all the school functions at both schools, a near teenager in the house atop all that.
It was the #1 thing that concerned me back then, could barely participate in the simplest tasks at home, if I could remember at all, and with another baby on the way, sex unknown at the time, what would 5 years later look like? THAT is the scary stuff, the unknowns.
Well, guess now we know, life couldn't get more stressful right now, nor be any better. I'll take the whole ball o' wax, just take away the fatigue and give me some memory back and I'll take it from there.
I will always consider myself one of the fortunate ones considering the journeys seen with others the past 6 years.
Not sure what that mysterious " MS" beast is doing, but the CCSVI monster remains tamed and timid, fine by me.
When I get insurance again may go get an MRI, see what the state of the union is. No reason to get an MRV unless symptoms or otherwise dictates, so, patent stents are an assumption, no reason to believe otherwise.
Take care all.
magoo wrote:This is truly terrifying. When was the last time your stents were looked at? I didn't think stents could move after endothelial tissue grew over it.
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