magoo wrote:I would sent your scans to Dr. Dake ASAP.
Yeah, he was the first one I called after discovering, had an ultrasound yesterday, right now a contrast CT of excellent quality, tech said it was lodged in a branch, could go no further, exactly what Dake said yesterday just seeing xrays.
My local doc who is very interested in CCSVI from the git go is the one who did the ct and ut. So yes, Dake will get a copy of the scans. Plus my guy is sending the stuff to another IR at UCLA for his opinion. No insult to Dake at all, but I need someone local sometimes to lean on, long distance calls and emails are fine for routine stuff, but now I have someone intimately familiar with me, and CCSVI. He's already submitted his prior work to ISNVD, hopefully they'll take a look at his abstract. He wants to write up something on this too, because technically it is a de ice failure that should be reported, so others may learn. I'm not against taking the thing out if possible, if it furthers the cause and adds to the knowledge base.
Very very fortunate either way, that this thing just cozy'd up in the perfect spot, no harm no foul. Last night spent 4 hours (eventually gave up) trying to get this CT done. Every professional that hears about it is very interested, not just in the CCSVI part, but the stent relocation too.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap