Well I got the emails and had to come here and check. I don't get out much so probably no whiplash in my future but has anyone else 'felt' their stents as a sore and swollen area right beneath your ear? I suppose that's location related but mine sometimes gets sore and that swollen spot is not on the other side so I assume it's my lowest stent!
Last update since I haven't been on here in years, my shoulder issue, if anyone remembers, where my spinal accessory nerve got damaged going through the foramen, is going to be an issue forever. Could not work it out with PT since it's nerve damage but arm goes numb all the time due to posture and position so yeah! Marie can probably echo that sentiment!
Still on my feet and sporting a newly botox'd bladder! That is life changing. Two separate uros told me I couldn't get it because I only void about half my bladder contents but I had a new one that said "are you scared to cath?", I said no, and he said "you need botox!". So goodbye stadium pals every day and hello cathing in public restrooms! But now I have TIME to get to the BR! And if you have the right stuff, it's not that bad at all! When you go to a bar because your favorite micro brew has a tap takeover and the restroom is upstairs and doesn't have a stall or lock on the door, cathing can be tricky but not impossible! HaHa!
Anyway, my email is email@example.com
so get ahold of me if you want to yap! I'm still supportive of CCSVI knowing that it helps many but my veins are still flowing (as shown by the new CCSVI Dayton clinic) and I still progress so my MS is obviously the kind this doesn't help. But with so many others getting relief there has to be more to it than the medicines!
Sorry to hijack your thread Mark!