Notes from CureIous' at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Notes from CureIous' at Stanford

Postby CureIous » Mon Apr 03, 2017 12:53 pm

vesta wrote:Greetings.

When did you have the accident that dislodged your stent and do you think that is related to your hand symptoms and cervical spine lesions?

Best regards, Vesta



vesta wrote:Greetings.

When did you have the accident that dislodged your stent and do you think that is related to your hand symptoms and cervical spine lesions?

Best regards, Vesta



Good question, actually after reviewing MRI reports, a few which had been languishing in my email inbox for years unread, I can categorically state that the right stent migrated from it's position sometime early 2010, not long after implantation, and not as a result of any accident.
MRI 4/2010 did NOT visualize right stent, only left stents.
Whenever it moved, I was not aware, neither noticed anything.

Also, the MS disease activity back then was quite a bit more pronounced on MRI with/without contrast, than my latest MRI.

As I'm sure we're all aware, lesion count, lesion enhancement post-gad etc. is not always a reliable predictor of disease severity and/or symptoms. That being said, I did find interesting that this recent neuro I saw, a pain management doc not MS specialist, noted that it would be the front left parietal lobe which may be of interest insofar as the right hand is concerned, and that is in fact where quite a bit of lesion activity had been noted in the past, enhancing or not. So not sure if and how the recent cervical lesions factor in, I'll see what MS doc says later this month. Mostly these are academic considerations anyways. Okay so we know thus and so, what exactly to do about it?

New-neuro of course reccomends drugs. Not interested. While this "latest" setback is disheartening, the other symptoms which were far more debilitating are still gone, and while everything I have recently reviewed states that the right vein is/was compromised very early on after stent migrated, the left side continues to hold up it's end of the bargain, so at least there's that.

Again, no regrets, and would not change much except perhaps increasing Right stent diameter. I am far more functional on a daily basis today, than 2008. Just have a numb right hand.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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CureIous
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