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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby mrhodes40 » Tue Sep 22, 2009 7:56 am

I have suspected since '03 then strongly believed since '04 when Barnett and Prineas came out to finally make me get off the fence, that MS is not autoimmune.

Because of that belief I have refused tysabri, novantrone etc. These drugs are very expensive close to 50 grand a year--and that is before you pay for side effects (like lifetime LEVF for nov) Taken together these costs are difficult to fathom---for life no less!. Having my venous headache evaluated and stenoses treated cost far less than if I had taken one of those drugs for these years. I agree with you MrSuccess. Hopefully it will turn out that the initial treatment can be successful with jut a tweak or two and not MRV's every 6 months or something...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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mrhodes40
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