robbie wrote:i couldn' even begin to afford this treatment but if it worked i would find a way, someone said it takes 4 months for a lesion to heal does that mean people should see improvements around this time?not just fatigue and brain fog but actual mobility improvments.
The hope and prayer is that this will become standard operating procedure for MS patients. Instead of going to a neuro for immune modulating meds, a newly diagnosed patient would see a vascular doctor...maybe have a balloon procedure or stenting. The cost savings long term would be huge....Jeff's Copaxone costs $25,000 a year, plus the other meds for symptoms (like baclofen) he no longer needs. So, the initial procedure will cost some $, but there will be long term savings to insurance companies over the lifespan of an MS patient.
We have no idea how this is going to help people who are further down the MS path (over a 3 or 4 EDSS) because it's going to take longer for healing. Yes, lesions can remyelinate...but what if there is axonal damage? That is the unknown. The hope is that once the reflux and continual injury are stopped, healing and rewiring can begin. But we're only just a few months in on this.
People like Holly, Mark, Sharon, Alex, Lew and Marie will be able to let us know how the procedure has affected their mobility further down the road. So far, spasticity is relieved in most of them. What does the future hold? We'll see. Wish we could be more definite now, but the pioneers are taking the financial/physical hit for everyone else. The science behind this is good, though.