Lady Stewart-Stanford Update

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Sharon » Wed Aug 12, 2009 7:43 pm

Tomorrow I will start a new thread about Feldenkrais -- I think we kind of hi-jacked LadyStewarts log - sorry Sharon :oops:
There is quite a bit of information on the Internet -- I was hesitant when I first heard about it - now it is part of my MS therapy.

Sharon
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Postby ladystewart » Thu Aug 13, 2009 1:14 pm

No apologies for anything Sharon. I was actually researching the topic as well! Will help all. :)
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Postby Sharon » Tue Aug 18, 2009 4:24 pm

Hey, Sharon - was wondering how you were doing? Do you have any significant recovery issues?
Check back in if you have a moment

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Postby MaggieMae » Fri Aug 21, 2009 1:08 pm

LadyStewart,

It has been too long since you posted. How are you?
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update

Postby ladystewart » Fri Aug 21, 2009 2:25 pm

k--my mother and grmother had problems with coumadin. Nose was bleeding and Dr. Dake told me to go off of all medicine. I have and bleeding stopped. Blood levels have lowered. Waiting for MORE/GOOD changes.
Not an MS cure. trying to decide what meds to go on now? Been on copaxon, rebif, novantrone............
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Postby LR1234 » Fri Aug 21, 2009 2:27 pm

Hi Lady,
Do you mean that CCSVI is not an MS cure because you still feel as if you are progressing?

L x
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update

Postby ladystewart » Fri Aug 21, 2009 2:37 pm

No--I do not think I have progressed but this is a surgery not a 'cure' for MS. RIGHT??????????
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Postby LR1234 » Fri Aug 21, 2009 2:47 pm

I have no idea! I think probably not a cure for MS... although I think people are hoping it is a cure. I will take prevention of progression though, thats great in itself.
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Postby Sharon » Fri Aug 21, 2009 5:23 pm

I will take prevention of progression though, thats great in itself.

YES!!
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Re: update

Postby CureOrBust » Fri Aug 21, 2009 7:56 pm

ladystewart wrote:No--I do not think I have progressed but this is a surgery not a 'cure' for MS. RIGHT??????????
How do YOU define what YOU see as a cure? stopping the disease process? or that AND reversing the damage?
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Postby ladystewart » Sat Aug 22, 2009 6:00 pm

A 'cure' would reverse anything like you NEVER had MS. Like a heart transplant--for example. I would be happy to use a cane again--using wheelchair now.
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Postby Jamie » Sat Aug 22, 2009 8:34 pm

I respectfully disagree.

If you had breast cancer and had a breast removed or say testicle cancer and that was removed and you had chemo and radiation and had no further cancer after 5-10 years then you'd be cured.

Would you only consider yourself cured if your breast/testicle had grown back?
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Postby CureIous » Sat Aug 22, 2009 10:16 pm

:)
Last edited by CureIous on Sat Oct 03, 2009 3:24 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Sharon » Sun Aug 23, 2009 7:02 am

Mark
Come on body, you can do it! Wishful thinking I know, but what's wrong with dreaming a little???


NOTHING! Especially since those dreams are now about recovery and not about getting worse.
Did you know that when you imagine moving a body part, the brain is firing? So, those dreams are helping to heal you.

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Postby bestadmom » Sun Aug 23, 2009 8:29 am

I am severly limited in my mobility and I haven't set the bar higher as far as a cure goes. For me, a cure would stop the autoimmune attacks, thereby halting progression. Repair is a whole other ball game, and I think stem cell transplants and physical therapy will take care of that.
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