This Is MS Multiple Sclerosis Community: Knowledge & Support

Tomorrow I will start a new thread about Feldenkrais -- I think we kind of hi-jacked LadyStewarts log - sorry Sharon
There is quite a bit of information on the Internet -- I was hesitant when I first heard about it - now it is part of my MS therapy.

Sharon

No apologies for anything Sharon. I was actually researching the topic as well! Will help all.

Hey, Sharon - was wondering how you were doing? Do you have any significant recovery issues?
Check back in if you have a moment

Sharon

LadyStewart,

It has been too long since you posted. How are you?

k--my mother and grmother had problems with coumadin. Nose was bleeding and Dr. Dake told me to go off of all medicine. I have and bleeding stopped. Blood levels have lowered. Waiting for MORE/GOOD changes.
Not an MS cure. trying to decide what meds to go on now? Been on copaxon, rebif, novantrone............

Hi Lady,
Do you mean that CCSVI is not an MS cure because you still feel as if you are progressing?

L x

No--I do not think I have progressed but this is a surgery not a 'cure' for MS. RIGHT??????????

I have no idea! I think probably not a cure for MS... although I think people are hoping it is a cure. I will take prevention of progression though, thats great in itself.

YES!!

How do YOU define what YOU see as a cure? stopping the disease process? or that AND reversing the damage?

A 'cure' would reverse anything like you NEVER had MS. Like a heart transplant--for example. I would be happy to use a cane again--using wheelchair now.

I respectfully disagree.

If you had breast cancer and had a breast removed or say testicle cancer and that was removed and you had chemo and radiation and had no further cancer after 5-10 years then you'd be cured.

Would you only consider yourself cured if your breast/testicle had grown back?

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Mark

NOTHING! Especially since those dreams are now about recovery and not about getting worse.
Did you know that when you imagine moving a body part, the brain is firing? So, those dreams are helping to heal you.

Sharon

I am severly limited in my mobility and I haven't set the bar higher as far as a cure goes. For me, a cure would stop the autoimmune attacks, thereby halting progression. Repair is a whole other ball game, and I think stem cell transplants and physical therapy will take care of that.