Can we get Dr. Dake a username for TIMS??
cheerleader wrote:Wonderful website...congratulations on getting the information to the German speaking public!
cheerleader wrote:I also note that you got rid of the "C" for chronic...which may not get you all the web traffic that would search "CCSVI". The reason Dr. Zamboni included this word was to show its relationship to the chronic nature of venous insufficiency in the legs or CVI. Like you, I am an optimist, and believe the chronic nature in my husband is gone...now that he has healthy venous drainage. But these are small points...the larger is that you are spreading the word!
I had a quick read of a few pages, looks good.ibex wrote:As always if you have corrections or suggestions, please let us know.
CureOrBust wrote:I had a quick read of a few pages, looks good.ibex wrote:As always if you have corrections or suggestions, please let us know.
A couple of suggestions from memory. The definition of TIMS says "with forum in USA". I think it is more appropriate to say "English" instead of USA, since participants are not restricted to the USA.
CureOrBust wrote:And the front page, under "What can I do" has the sentence "Unfortunately this hypothesis is familiar just a few people and specialists until now." I think it might be better if it read as " Unfortunately, this hypothesis is currently familiar to just a few people and specialists."
CureOrBust wrote:Hope this helps, but feel free to ignore.
Actually, the thing that worried me the most is the explanation of how CCSVI relates to / causes MS. As far as I understand, this piece of the puzzle is REALLY conjecture at this point in time, and there are a number of theory's currently, none of them with any hard scientific proof. But I could be wrong. I think the paragraph simply opens you up to neurologists throwing the whole theory out as they have some belief or even proof that MS is not caused by hypoxia. (in English, "throwing the baby out with the bath-water")
But I understand, its your web-site, and therefore your portal to present your view / understanding.
Pepe wrote:So many thanks for the website... for the forum CCSVI in TIMS... and for everything you are doing...
Pepe... from Spain.
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