We have a hunch it will stop progression of the disease, and remit some symptoms in some people.
Some doctors think CCSVI might be causative of MS, and is a congenital disease
cheerleader wrote:Think it's time to review what we know (fact), and what we don't know (conjecture)-
*CCSVI has been found in 100% of the CDMS patients Dr. Zamboni has tested. He has reported this in a peer reviewed paper. It is only related to MS patients. No other neurological diseases had it. Repeat: CCSVI is only found in MS patients. It is related to MS. SUNY Buffalo was interested in his research, and are doing an independent 1000 person blinded study on CCSVI right now.
*Dr. Simka found CCSVI in 9 patients. He is writing up his research.
*Dr. Dake has seen in it 30 or so patients. He will be writing up his research and is beginning a clinical trial.
*Dr. Zamboni used a balloon procedure to open the stenosied veins of 18 CDMS patients in the midst of relapse, and there was a return of function in all patients, without use of steroid, in 4 hours to 4 days. He presented his findings at the Charing Cross Vascular Symposium.
One thing I note about this one, Dr Dake's "criteria" are very different to Dr Zamboni's.mrhodes40 wrote:Dr Dake does not have 100% but no one really expected that in an open call with no inclusion criteria.
Jamie wrote:That was not the full paper though was it?
Isn't the full study yet to be published?
I really don't give a shit. Our lives are 100% better and that's good enough for me.
Well, that's fine for you. But for those trying to get other docs interested, it's a bit tough when the published papers are so flimsy.
by patientx, Jul 29, 2009 05:38PM
That's a valid argument about CCSVI being caused by the MS, instead of the other way around, and has been raised by neurologists. However, the damage done by MS is either in the brain or spinal cord. The stenosis seen in MS patients is usually downstream from this damage, in the jugular veins or the azygous. And the stenosis or strictures are almost mechanical in nature. So, to me (and others), it's hard to imagine how the disease process in the CNS could be causing the CCSVI.
Also, it's acknowledged (even by neuros), that a compromise of the blood-brain barrier is part of the pathogenesis of MS. To my knowledge, this hasn't really been explained. CCSVI could offer one explanation.
Not that I'm a salesman for the CCSVI theory; just thought I'd offer some explanations...
Join Date: Dec 2008
I don't know if Marc has it on his blog, but you can find plenty of info about CCSVI (as well as about Revimmune) at http://www.thisisms.com.
That's amazing you were asked to participate in this study at Buffalo General. I tried volunteering and got no response from them.
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