This Is MS Multiple Sclerosis Community: Knowledge & Support
Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
Talked with Kate late last night as she stepped off the plane in Dallas. Yesterday was quite a day for both Kate and James. Seems that all he needed was a good night sleep. He woke yesterday morning raring to go so with all the plan changes they were quite busy booking flights and making arrival arrangements. I still have not spoken with James but will sometime this morning. His parents met him on arrival back here in Oregon. So he is safe at home and being well cared for. It sounds like quite a whirlwind tour for our Dr. Dake also. Hope to here from Holly soon… Wishing Peace and Health to both our brave pioneers, Mark
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS, - Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs - Jan. 19, 11: control venography in Katowice - negative but I feel worse
I just spoke with James this Morning, and he sounds great. He said that his energy level is defiantly better, and he feels more alert. The other issues he has will take a lot of time to heal if at all. He is nearly wheelchair bound and legally blind. So for now I keep telling him to be thankful for the little plusses and keep a positive outlook for the future. Dr. Dake is keeping a close eye on him so he is in good hands. I feel time is now on our side with having done the much needed procedure. We were hoping to talk with our mutual Dr. this week. It will have to wait until my return from checkup visit with Dr. Dake on September 1st. Peace and Health, Mark
I spoke with James last night about his return to Stanford. He is doing quite well. He had a minor tune up with ballooning of a plug in one of the five stents that were placed two months ago. Everything else looked great in fact many of the smaller lesions seen on earlier MRI'S had vanished and the larger ones diminished some. He is in great spirits and feels great. Mind is clear and fatigue is way down. Still says that his motor skills are the same if not a little worse than before the first surgery which Dr. Dake finds puzzling. Time will tell what he can gain back in that department. He is back in his recording studio today doing what he loves making music. Now you know what comes around goes around. After asking how I was doing which to be quite honest is not good he gave me the pep talk that I have always given him. Stay positive! Wow did that make me feel good coming from my dear friend James. Peace and Health to All, Mark
Good to hear Mark. I pray that you are next. You deserve it. You have one of the most indominatable spirits I've seen on here, or anywhere for that matter. I can't tell you to keep your chin up because I know that you do that better than most. Just know we're pulling for you. Do you have any follow up stuff scheduled?
I am reading this and sending all the best energy to your friend! I am really interested in how this turns out for someone with more disability. For my part, I know I would be grateful to have the mental clarity and lack of brain fog, even if the mobility were still an issue. (I have used a wheelchair for years.) I also have young children and I know how great it is to be there and be active and alert and really a meaningful part of your family's whole life -- I hope everything goes great for James!