My friend James at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My friend James at Stanford

Postby skydog » Thu Aug 13, 2009 8:07 pm

Just got off the phone with my friend James and his awesome companion Kate. He has completed the full complement of tests and met with Dr. D. Sounds like his stenosis has topped the charts. Left side not working and right side, well lets say missing in action. Dr. Dake says the worst he has seen so far. Great news for James as his disability is high and reflects the diagnosis well. He goes in for repair at 0900. Please send your best wishes. He is a great man with two beautiful children, they need their dad back in action composing music and enjoying life. Our positive thoughts are with him. Peace and Health Mark and Brenda
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Postby cheerleader » Thu Aug 13, 2009 10:12 pm

Good thoughts and musical comrade-ship going out to James and his family. Keep us posted, Mark.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CureOrBust » Fri Aug 14, 2009 1:05 am

hope all goes well, and the surgery gives back what MS has slowly siphoned away.
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Postby ladystewart » Fri Aug 14, 2009 12:17 pm

Good luck!!!!
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Postby skydog » Fri Aug 14, 2009 4:54 pm

We just got word from kate that James is OK and is spending the night. 2.5 hrs of surgery and 4.5 in recovery after surgery. Ouch !!! In a lot of pain but resting now. No word from the Dr. until morning so we will post as soon as we get the full report. Thank you everyone for your prayers. Peace and Health, Mark and Brenda
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Postby cheerleader » Fri Aug 14, 2009 5:16 pm

Sorry to hear of James' tough time, but so glad to know Dr. D was able to help him, and you and Brenda will be there to encourage his healing.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Fri Aug 14, 2009 6:57 pm

Hope he's fine Mark.
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Postby skydog » Fri Aug 14, 2009 8:01 pm

He is in a place that gives the best care in the world. We will hear from him in the morning when the drugs ware off. Italian and tough, He will pull through fine. Cheers, Mark
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Postby gibbledygook » Sat Aug 15, 2009 1:03 am

I hope the painkillers do their stuff and that you can get some rest.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Sharon » Sat Aug 15, 2009 7:55 am

Mark -

Hope all is well with your friend.
So Dake said your friend was the worst that he has seen. You know, I am finding comfort in the fact that Dake has found something different in all of us, and he is treating each of us individually, and personally.

Sharon
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Postby skydog » Sat Aug 15, 2009 10:33 am

The latest word from Kate is James will be staying another day or two. He was in a lot of pain last night and in a very week condition this morning from the rather extensive surgery in which Dr. Dake put in 5 stents. Kate spoke him about James and a little of what the future might bring. The short of it is Dr. Dake expects quite a remarkable recovery considering how severe James stenoses was. I will report more when I get to speak directly with James. Thank God he is OK and in the best of care. Thank you all for your thoughts and prayers. Peace, Mark PS as I was speaking with Kate she noticed that Neil Young walked into the cafeteria. Not likely a lookalike. Told here to go say hi to one of my favorite singer song writers, how cool is this… M
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Postby ErikaSlovakia » Sat Aug 15, 2009 10:55 am

Slovakia says hi to James!
I think of him and read all the posts.
He will feel better!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby skydog » Sat Aug 15, 2009 9:23 pm

I talked briefly with James this evening. He is doing alright, but quite tired from the whole ordeal and is staying another night at the hospital. It was a big relief to hear his voice. He sounded very optimistic about what the future may now hold. We didn’t talk much about the procedure. He just wanted to thank us for all the encouragement and support. Tomorrow after a good night sleep I am sure he will be ready to talk about the whole adventure. Rest well my friend. Peace, Mark
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Postby Loobie » Sun Aug 16, 2009 5:35 am

Sounds like he is taking the prize of "this one hurt the most!". Hope he recovers quickly.
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Postby gibbledygook » Sun Aug 16, 2009 5:42 am

5 stents!! How long were they?
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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