Catfreak's date for the testing and intervention

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby mrhodes40 » Wed Aug 19, 2009 12:30 pm

Way to go Cat! We enjoyed our stay at the Sheraton, the beds are super comfy and clean. They advertise you can buy their beds and bedding--!! I so appreciated that bed when I was recovering Wednesday and Thursday; it was like a big cloud of fluff.

Room service is expensive ($50 for 2) and the new Trader Joe's, which will be in walking distance to the south, is still "coming soon" (rgh!) so we got food at Safeway for the most part, but it is north a few blocks and we drove. There is food at Stanford in the cafeteria, and they even have an organic supply of things like soy yogurt and fruit cups you can get.

Since you won't have a car you might take along some thing to hold you--bagels or some such to keep in the room because there is no McDonalds or anything like that. Palo Alto is a pretty posh town.

I am happy you have an opportunity to see if this is right for you and to get evaluated. Fingers crossed!
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Postby Rokkit » Wed Aug 19, 2009 12:48 pm

I am excited for you, Cat and I'm so glad things are moving forward.

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Postby catfreak » Wed Aug 19, 2009 6:20 pm

Thanks Marie,

We will get there on Tuesday afternoon late and that bed will be a great comfort after the long plane to San Jose. I have tests Wednesday starting at 7am and see Dr Dake about 1:30. We may have a few hours of free time that afternoon, then back at the hospital at 9am Thursday for procedure. We are also staying until Saturday because I don't want to fly the day I am released from the hospital. So I can have a day to rest after the procedure.

I don't know if they will let my husband stay with me at the hospital overnight so we have the hotel room for him, if he will go to it?

I know everyone says figure out where everything is the day before, but we won't have the opportunity to do that so I just hope we can find it all.

I don't think it has really sunk in yet that I am actually going to Stanford.

Rokkit, thanks for the support!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mormiles » Thu Aug 20, 2009 8:02 am

Hi cat, I made our travel and lodging arrangements yesterday too. We are staying at the Sheraton too, and I don't intend to be shy about checking out the university student uni0n for food, with the help of the shuttle of course. Plus, the Cal-train station is right there, and I won't be reticent to take the train to other stops where more food choices might be more available. Students need cheap food, so they should be a good source of information about it.

Catfreak, I'm really excited for you, and I hope this will bring meaningful changes to your life.

PS: Sorry I didn't see your PM until this morning!
Last edited by mormiles on Thu Aug 20, 2009 8:26 am, edited 1 time in total.
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Postby Arcee » Thu Aug 20, 2009 8:08 am

Cat, I did not have time to check things out the day before, and I have a horrible sense of direction, and I had no problem getting around. Things are well labeled, relatively close, and people are real friendly to stop and ask.

Mormiles, the Marguerite shuttle is super easy and you are right that there are many good food options around campus and downtown. The location of Sheraton is super. I got some food at the nearby supermarket and that really made it easy for the post-surgery days.

Very excited for you!
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Postby skydog » Thu Aug 20, 2009 9:12 am

If you use the cabs be street wise. Study the route and make them stay on it. No wild goose chases. Should be a five minute ride from the Sheraton to Stanford and cost $10 plus a tip. Very quiet in the rooms and The beads are great at the Sheraton, but a little soft for me who is used to sleeping on a thin mattress over a tilted plywood board. Cheers, Mark
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Postby mormiles » Wed Aug 26, 2009 8:15 am

Okay Cindi, Our prayers are with you. We're waiting and interested to know how you are doing and exactly what happened. Please let us know everything as soon as you can. God bless you.
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Postby Jamie » Wed Aug 26, 2009 9:21 am

Wait, I thought it was next week?
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Postby mormiles » Wed Aug 26, 2009 11:20 am

Jamie, Slap myself on the forehead...you're right! It's Sept. 2 & 3. Is there someone else on the forum who is there this week?
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Postby catfreak » Wed Aug 26, 2009 11:58 am

You scared me! I thought I missed my plane!!

Yes, this time next week I will be sitting with Dr D and discussing my test results. OMG!!!! I am sorry, I lost control for a brief moment....

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mormiles » Thu Aug 27, 2009 9:49 am

Cindi, So sorry about that. If you and I ever meet, YOU can slap my forehead! I'm so envious of your short wait time...just think, you'll be watching for changes in yourself in only several days.

PS: I'll pray for you next week too!
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby catfreak » Thu Aug 27, 2009 10:36 am

Thank you Joyce!

How about instead of slapping your forehead I just give you a friendly hug for caring about me?? :)

Acree,

How long did you stay after the procedure? And what is the Shuttle you are talking about?

Thanks,

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Artifishual » Thu Aug 27, 2009 12:39 pm

Ha Ha, that's funny

Good luck Cindi, praying for you!
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Postby Arcee » Thu Aug 27, 2009 3:42 pm

Cat, I had the procedure on a Wednesday and flew home that Saturday. The shuttle is called the Marguerite and it is run by Stanford and it is free. It goes in continuous loops, clockwise and counter clockwise, around campus and the medical center. There is a stop right behind the hotel at the train station. I took it, no problem, and opted for a cab for the morning of the surgery just so I didn't have to deal with anything. (I think it was $10.)

Here's a link that you might find helpful:
http://transportation.stanford.edu/marg ... ched.shtml

Will be thinking of you!
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Postby catfreak » Thu Aug 27, 2009 5:16 pm

Thanks Acree, this is great info.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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