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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby chrishasms » Tue Aug 18, 2009 8:51 am

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Last edited by chrishasms on Sat Dec 05, 2009 6:40 pm, edited 1 time in total.
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Postby catfreak » Tue Aug 18, 2009 9:00 am

Good for you Chris!

This is a very difficult decision to make. I waited to hear more and I know I have made the right decision.

Hope you get a call from Alex soon.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mormiles » Tue Aug 18, 2009 9:10 am

Chris, Thank you for doing this for yourself.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby Loobie » Tue Aug 18, 2009 9:31 am

As we've talked to before. You've already been in search of the Holy Grail. Going through this whole process again? I keep thinking that's exactly what you must be going through. Like how much energy and treasure do I have to try something all over again when I already DID that? I understand your trepidation. All the good energy that you had poured into HiCy has to be charged up again; for something different. This can't be easy to look forward to. If you're like me, you only have a certain amount of energy anyway! Congratulations, although that could just be me wanting company in the CCSVI boat. However, as we've often said, this isn't/shouldn't have any negative effects if it turns out to be not it. However, hearing these testimonials from the people who've been through the Zamboni deal are truly inspiring. Do what it takes to charge yourself up man. You didn't sit on your hands then and I'll doubt you do it now. I just keep going over and over in my head as I have surgery complications and what not, that this is the best hope we have right now. The drugs aren't working, so now what? Short of doing something nutty, this is pretty much it; although you and I both know that some think this is nutty :lol: .

At any rate, I want you to know how hard we'll be pulling for you, no matter what you do. You took a chance before and we're left holding the bag a bit (me too in the Tovaxin trial) so I know the mental process is just heavy. I know you've researched it enough so I hope this is what it takes for you. I'm still dealing with some post surgery blues as my shoulder, which had quit hurting a few weeks ago, decided to really seize up this weekend. Well the spasms have pulled the shoulder slightly out of socket. But to date, it's all been surgery related stuff I've been dealing with and I'm not taking anything. I don't "feel" it working yet, but I don't "feel" like I'm progressing either. Take that for what it's worth, but know I'll be pulling for you.
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Postby Jamie » Tue Aug 18, 2009 9:37 am

Hi Chris,

So I didn't answer your facebook question but my cost I meant your incidental expenses with travelling to Cali.

Not the procedure itself.

Thanks

Jamie
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Postby Sharon » Tue Aug 18, 2009 3:56 pm

Hi Chris,
This has been a hard decision for you to make. You were so hopeful with the HyC, and you and your wife put so much energy into that treatment and your recovery. As you move forward, know that you will receive the best of care at Stanford.

So, then there will be three Colorado stenters. :) I have a friend going to Stanford Aug 25th.

Sharon
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Postby chrishasms » Tue Aug 18, 2009 4:03 pm

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Postby Lyon » Tue Aug 18, 2009 4:19 pm

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Postby Jamie » Tue Aug 18, 2009 4:20 pm

Exactly.

I look at the hicy as buying us time.
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Postby Jamie » Tue Aug 18, 2009 4:20 pm

Both of you are pals of mine but Bob's comeback there was ace.
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Postby Lyon » Tue Aug 18, 2009 4:23 pm

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Postby Jamie » Tue Aug 18, 2009 4:27 pm

Beats being ignored!
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Postby chrishasms » Tue Aug 18, 2009 4:32 pm

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Postby Lyon » Tue Aug 18, 2009 4:40 pm

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Postby Jamie » Tue Aug 18, 2009 5:03 pm

There's no doubt that warfarin exacerbated and probably made it fatal.

They run through the risks and you think 'yeh yeah'.

Makes you think.
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