Received another opinion, and off to NIH tomorrow

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby whyRwehere » Wed Aug 19, 2009 4:29 am

Thanks for checking in before you go, and I look forward to the NIH opinion. Good Luck.
User avatar
whyRwehere
Family Elder
 
Posts: 908
Joined: Mon Oct 03, 2005 2:00 pm

Advertisement

Postby CureOrBust » Wed Aug 19, 2009 4:35 am

prof8 wrote:Did you get a sense of why the radiologist in NY would not recommend stents be placed that high up in the jugulars?
I do not know if it is related, however, in the preliminary results paper from Zamboni (http://www.fondazionehilarescere.org/pdf/CX.PDF) there is the following section:
Zamboni wrote:However, no attempt at a stenting procedure was made in the absence of a dedicated device capable of preventing migration. This device would fit the particular morphology of the intemal jugular vein, similar to a upside down milk bottle, and, finally avoid protrusion into the brachiocephalic trunk.
User avatar
CureOrBust
Family Elder
 
Posts: 2926
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Postby mrhodes40 » Wed Aug 19, 2009 6:08 am

The brachiocephalic is at the bottom end of the jugular vein, not high, so that is probably not the reason considering it had something to do with the "high" location.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
User avatar
mrhodes40
Family Elder
 
Posts: 2066
Joined: Thu Sep 23, 2004 2:00 pm
Location: USA

Postby zap » Thu Aug 27, 2009 3:07 pm

:?: Bump :?:
User avatar
zap
Family Elder
 
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm

Postby Loobie » Thu Aug 27, 2009 4:18 pm

Best of luck Marc!!
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA

Postby zap » Sun Nov 08, 2009 4:44 pm

Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

:?:
User avatar
zap
Family Elder
 
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm

Postby cheerleader » Sun Nov 08, 2009 5:18 pm

zap wrote:Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

:?:


Hey Zap..it's not rude, we're all curious. Marc's just had his second cataract surgery, after another trip down to NIH, and is taking some time away from the computer to heal. Read his blog:
http://www.wheelchairkamikaze.com/
As always, he is an articulate and thoughtful man- I hope we get the report from him in the near future.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5077
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service