Memorial for Holly : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Memorial for Holly

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Sharon

Post subject: Memorial for Holly

Posted: Thu Aug 20, 2009 4:12 pm

Family Elder

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado

Memorial for Holly

“peekaboo”

Member of ThisIS MS since February 9, 2009

Joined her God August 19, 2009 at 2:15 pm

Holly will continue to contribute to multiple sclerosis
Research at the Human Brain and Spinal Fluid Center, LA Calif.
Quotes from Holly:
Posted: Wed Jul 29, 2009 12:17 pm Post subject:

Quote:

Hi kay -

TIMS has so many topics re:ms that it can keep you busy for some time. I hate to brag but I must say that this is an intelligent as well as empathetic board around. And one doesn't have to know rocket science because there are people here that can explain it to us common folk

Posted: Mon Jul 20, 2009 11:31 pm Post subject:
--------------------------------------------------------------------------------

Quote:

There is no one trying to "convert" anyone to any type of treatment. We are adults and we make our own decisions. There are all sorts of info on TIMS regarding all sorts of therapies and results from those who have tried them. Again this is personal choice. And that is why CCSVI recieved its own forum so it would not cloud any other forum.......

Posted: Wed Jul 15, 2009 11:05 am Post subject:

--------------------------------------------------------------------------------

Quote:

Hi mex5

come get some sunshine...you need to be happy where ever you decide to reside .......

Posted: Tue Mar 31, 2009 2:22 am Post subject:

--------------------------------------------------------------------------------

Quote:

My experience is that my friends are in denial...they cannot accept that their friend who was once strong and a go getter is now quieter and sedate...I will talk w/them on the phone and I will have to remind them of my condition. This is the same w/ my family. Yes I gues your true friends will sick it out w/you and the others will fade away. (not that I had a ton of friends as i did when i was younger anyway. Being older seems to weed out alot of the misfits.) I just try to maintain a support system some only know me having MS.

Make new friends but keep the old...One is silver and the other gold.

Goodbye dear friend

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cheerleader

Post subject:

Posted: Thu Aug 20, 2009 7:26 pm

Family Elder

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California

This is beautiful. Thank you for sharing some of Holly's posts with us, Sharon. Her voice lives on with us, even though her spirit has moved ahead. It's going to be unreal to me for a long time. God bless you, Holly...for all you did for so many. We are so indebted to you-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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LR1234

Post subject:

Posted: Fri Aug 21, 2009 1:33 am

Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California

Goodbye Holly :cry:

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Loobie

Post subject:

Posted: Fri Aug 21, 2009 4:59 am

Family Elder

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA

I always had this kind souls mental picture of her just from her screen name initially, and then as I interacted with her later. I imagine there's a story behing everyone's screen name and I always pictured her as someone ready at a moments notice to play peekabo with a child. It saddened me yesterday to delete my "friend request pending" on Facebook for Holly since she was at Stanford when I sent it. It was like closing a door. She will give me strength when I feel like giving up. That's how I'll remember her.

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com

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Needled

Post subject:

Posted: Fri Aug 21, 2009 6:20 am

Family Elder

Joined: Wed Jan 14, 2009 4:00 pm
Posts: 357
Location: Connecticut

Words seem so inadequate.
How could I have a friend I never met? How could I lose her? I don't know, but I have. :cry:

Rest peacefully, Holly.
I would be very interested in contributing to any charities or donations in Holly's memory. Maybe her family would be willing to share that with us?

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Sharon

Post subject:

Posted: Fri Aug 21, 2009 6:53 am

Family Elder

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado

N
Holly's sister will be sending a message to the forum in the next few weeks. I will ask her to put donation information in her message.

Thanks
Sharon

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catfreak

Post subject:

Posted: Fri Aug 21, 2009 6:56 am

Family Elder

Joined: Sun Jun 01, 2008 3:00 pm
Posts: 791
Location: Mississippi

Maybe we could donate to TIMS in Holly's memory.

Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

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Jamie

Post subject:

Posted: Fri Aug 21, 2009 9:34 am

Family Elder

Joined: Mon Jan 07, 2008 4:00 pm
Posts: 596

Who runs/owns TIMS?

Has anyone got an email address for them? I have an idea.

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Sharon

Post subject:

Posted: Fri Aug 21, 2009 10:17 am

Family Elder

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado

Jamie -
Under the FAQ tab on the home page of TIMS

Quote:

Who runs this site?
We are a group of friends who have been affected by MS in various ways--some are generally interested in autoimmune diseases, some have it, some have significant others who have it, others still have best friends or parents. All of us are disgusted with the state of treatments today and at the same time, brimming with excitement over what is being done in the research and drug pipeline field.

We are taking a stance of anonymity for a reason-- this site is to remain unbiased and focused on MS, not us. We contribute by using our skills to create a community and fill it with content, the rest is up to our users such as yourself

You can also donate to the upkeep of the site...scroll down on the home page..lower left hand corner.
Aaron is the name of the administrator

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javaneen

Post subject:

Posted: Tue Sep 01, 2009 5:32 am

Family Member

Joined: Wed May 20, 2009 3:00 pm
Posts: 85
Location: North Haven, CT

Any information on where to make a donation in Holly's name?

_________________
javaneen

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radar22

Post subject:

Posted: Wed Sep 02, 2009 9:03 am

Getting to Know You...

Joined: Tue May 26, 2009 3:00 pm
Posts: 21
Location: Fayetteville Pa

Quote:

make new friends but keep the old, some are silver the other are gold

It's hard to say goodbye Holly.... :cry:

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mrhodes40

Post subject:

Posted: Wed Sep 02, 2009 12:51 pm

Family Elder

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA

Sleep sweetly dear friend.... I will remember you always
marie

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

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whyRwehere

Post subject:

Posted: Wed Sep 02, 2009 1:59 pm

Family Elder

Joined: Mon Oct 03, 2005 3:00 pm
Posts: 900

I wanted to post a picture of lavender here, but couldn't figure it out. Holly was lovely in her posts, I think I would have liked her in person. My deepest sympathies to her loved ones.

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CNClear

Post subject: Memorial for Holly

Posted: Mon Sep 07, 2009 6:10 pm

Family Member

Joined: Fri Aug 28, 2009 3:00 pm
Posts: 96
Location: Near Atlanta, GA

Hello to you all...(and Ciao to Cheer)...I have spent the last few days reading everything in CCSVI from the beginning, as I didn't want to miss a thing...I feel like I actually 'know' some of the people here...like Holly...and now I come up this thread, "Memorial for Holly" and I have been searching for hours to try to find out what happened to her...can someone please tell me? I felt like I had the wind knocked out of me...I will introduce myself as soon as I can find which place is appropriate...any suggestions would be welcome as I no longer want to feel like a voyeur, but want to join you all...and I believe I may have something to contribute...but, first, please...what happened to Peekaboo? Thank you...Lisa aka CNClear

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Terry

Post subject:

Posted: Mon Sep 07, 2009 8:03 pm

Family Elder

Joined: Fri Oct 26, 2007 3:00 pm
Posts: 500

CNClear

http://www.thisisms.com/ftopic-7865-0.html

http://www.thisisms.com/ftopic-7886-day ... asc-0.html

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Topics		Author	Replies	Views	Last post
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	For Holly... [ Go to page: 1 ... 4, 5, 6 ]	cheerleader	85	12150	Wed Aug 19, 2009 8:11 pm skydog
	Holly at Stanford [ Go to page: 1 ... 4, 5, 6 ]	Needled	82	9979	Mon Jul 06, 2009 6:30 am Jamie
	THANK YOU FOR SUPPORTING HOLLY	jerkbutt	13	2158	Fri Dec 18, 2009 9:30 pm Sharon
	Remembering Holly	Needled	12	1854	Thu Aug 19, 2010 6:10 am se1956
	A note from Holly's sister	Sharon	11	1904	Wed Sep 02, 2009 9:32 am ladystewart

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