On Hold w/ Houston

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

On Hold w/ Houston

Postby Artifishual » Tue Aug 25, 2009 1:09 pm

getting app. for ultrasound testing.

looks like it will be sept. 24th and after the ultrasound i will meet with the Dr. to discuss the results.
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Postby Loobie » Tue Aug 25, 2009 1:38 pm

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Postby mrhodes40 » Tue Aug 25, 2009 2:50 pm

Arti, this is great news!! I am so happy for you :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby catfreak » Tue Aug 25, 2009 5:47 pm

Hey Arti!

Wonderful news. Please keep us posted.

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby cheerleader » Tue Aug 25, 2009 6:01 pm

Shannon! Great news...the squeaky wheel gets the ultrasound. Congrats on not giving up and finding a doc interested in testing for CCSVI.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby Artifishual » Wed Aug 26, 2009 12:16 pm

His nurse said they would start with the ultrasound and go from there. She also said that she forwarded the original paper from Dr. Z to the ultrasound tech to reference. She almost sounded that the ultrasound would be the first test and if that showed something then they might do another test, maybe the mrv? i dunno, we'll see. thanks for all the kind words. now it's just a waiting game :roll:
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