CNClear wrote:Sure wish there was an alternative to the Coumadin, but when I looked it up, the alternatives, like Heparin, despite having to be given intervenously, and just 2 days ago had a massive recall due to contamination, they think...there doesn't seem to be a good alternative...I am more leery about the Coumadin than any other part of the surgery...
Hey, I have a question that I keep forgetting to ask and maybe you can help me with...Why are you awake during the procedure? I'm kinda paranoid about anethesia anyway, and I dont mind that i will be awake during it, and I know that the docs don't like to use heavy anesthesia on people with MS (at least that's what they told me...) and is there some discourse that goes on during it? If so, how do you keep still?
Thanks to anyone who can answer this, as it has been bugging me to know the answer for a while now, but the damn brain fog keeps getting in the way and i can never remember to ask...that's why when it came to me now, I knew I better ask...
CNClear wrote:Thanks for all the insight! It really does help when you are sitting in the dugout or on the deck or where ever I'm supposed to be...waiting and wondering...
You guys almost make it sound like fun! (You really are a unique bunch)
marcstck wrote:I've been waiting patiently (well, not that patiently) to hear back from her, and I finally tried to reach her this past Tuesday. She didn't get back to me, and when I tried to call her today they told me she was not in. This is very unusual, as she's always been very responsive in the past.
I'm scheduled to go back down to the NIH for some more work ups on October 18 (a lumbar puncture and lymphopherisis, primarily for their research purposes), so at the latest I'll be able to follow up with her on the CCSVI subject than. I expect she'll get back to me before then, though, if not tomorrow then early next week.
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