Loobie wrote:albeit the progression part is not going on right now (Knock on BIG wood).
It sounds like you are embarking on quite a journey of discovery. Man I hope you find something. Having MS is shit enough, but to have at atypical case? I mean we don't even know much about "regular" MS, let alone atypical. I really, really hope some answers are found that improve your quality of life.
cheerleader wrote:Thanks for the update, Marc-
Not sure if any of the docs at NIH would like to attend the conference in Bologna on Sept. 8th, but maybe they can get an invite and travel taken care of (even at this late date). They will have access to all the specialists looking at CCSVI in one location, and would be able to discuss the implications of your results with the doctors that have seen it and are treating it....plus it's Italy and there's a couple of nice meals planned
Laboratorio delle Idee - Cristiana Canuto
via Santo Stefano 32 - 40125 Bologna, Italy
tel. +39 051 19986650 - fax +39 051 19985661
zap wrote:Any chance of some kind of response from Dr Dake about all of this? Or bringing him into the conversation with the NIH docs?
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