Sept 2nd and 3rd

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby catfreak » Thu Sep 03, 2009 7:12 am

Anybody heard from Kate? I thought we might meet her but so far have not.

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby GiCi » Thu Sep 03, 2009 7:34 am

Hi Kate,
You have take the best decision in your life. My heart goes with you and I am totally confident that you will benefit from the procedure.
Good luck and remember that you are showing the way to a world of sceptics.
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Postby Quest56 » Sat Sep 05, 2009 9:54 am

Hi, Kate,
Are you back home from Stanford? Was the stent procedure recommended in your case? If so, I hope you are well on your way to recovery.

Please give us an update when you are able.

CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day
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Postby CureIous » Fri Sep 18, 2009 10:54 pm

RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap
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Postby MaggieMae » Wed Oct 07, 2009 12:43 pm


While looking for dates to add to the list of names of those who have traveled to Stanford for tests and/or procedure, I came across your post. The last time you posted is when you said that you would be traveling to Stanford on Sept 2 and 3. Did you go? Did you have the test? Did you have the procedure?
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