This Is MS Multiple Sclerosis Community: Knowledge & Support

Wow, it's almost that time. I've really appreciated reading about all of your experiences. Of course, like MS, no two cases are the same but just knowing that there are others on the same journey gives me comfort.

I go in for testing on Wednesday and based on the results I may (probably will) have the procedure done on Thursday. I have SPMS and my symptoms have more to do with mobility than cognition so I'm not expecting this to be a magic bullet but I like the thought that I'm being proactive.

All the best,
Kate

Hi Kate-
Welcome to TIMS, and I wish you safe travels and maybe some answers at Stanford (assume that's where you're going, right?)
Keep us posted.
best,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Hi Kate,



Welcome to ThisIsMS. I hope that everything goes well for you with testing, and treatment as well if called for, at Stanford.

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Thanks.

NHE

Hi, Kate,
I look forward to hearing of many good things to come for you as a result of this experience. My turn is fast approaching.

Wishing you the best, and looking forward to sharing positive experiences and outcomes over the coming weeks...

--Tracy

_________________
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone and Ampyra user

Hi and welcome.

I look forward to hearing how things go for you, as I am similar in that my issues are mobility more so than cognitive also.

Hi Katie,

I will be there the same time for my testing and procedure. Hope to see you there. We will be staying at the Sheraton and we are flying in tomorrow.

Later, Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Hi Kate!
Good luck!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Hi Kate,
Nice to meet you! Good luck at Stanford and keep us posted:)

L

Good luck Kate!

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

Hi Kate, Nice to meet you and and good luck with everything. Please keep us posted. We're a nosy bunch, only with the best intentions, though.

Good luck and let us know how you are doing.

Welcome Kate, God bless you and keep you safe on this journey. It's only a few days until you'll be watching and waiting for signs of success. Stay patient and hopeful.

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Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."

Good Luck! Our day has ended here, so I have to wait til tomorrow for your report and Cat's... Frustrating!

Kate, i too am SPMS and like you I feel really good to have taken ,my opportunity to do something about this when I had no real options left.

I hope you have clear pcitures of your veins and can feel really comfortable about what you decide to do.
Good luck to you and Cat!!
marie

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics