Catfreak's Trip to Stanford!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby catfreak » Wed Sep 02, 2009 8:45 pm

Marie,

I am also fasinated by the whole deal and hope I get to see what they are doing on a monitor.

Everybody: More info on Palo Alto

The Sheraton:
1) They are giving Stanford patients a 50% food and drinks (non-alcoholic) coupon for thier resturant - eat-in - Saves a lot of money so ask for it.
2) There is bottled water in the room for $3 for a 1 liter bottle. I drank one cause the water here is nasty. My husband thought that was terrible to pay that but I was tired and did not care.
3) Internet access it $9.95 for 24 hours. I used my iphone or went to the lobby and used the complimtery computers there. Friday when I am recouping in the room I will pay the $ for it.

That's all I can think of now, oh, the beds are awesome!!

The shopping center is so cool and we enjoyed it very much. Bus ride is free! Bloomindales, Macy's, Neiman Marcus, Crate and Barrell plus many, many small shops and many designer shops!! Michael Kors!! OMG!!

There is a market there also, Andronico's 500 Stanford Shopping Center - that has a deli, bakery, salad bar, olive bar and drumroll please..... 1 gallon bottled water for $1.49!!! David got a big fat pastry for his breakfast in the morning for $2.12 since I can't eat after midnight.

Oh yeah, the handbag I was going to buy is still in Nieman Marcus :cry: :cry: :cry: It was a Louis Vutton and it was $1100 with a $438 charm attached. I took a picture of it to remember it by. I will post that later.

One more thing. There is a McDonalds in the Stanford shopping center and it does have a $1 menu....... :)

The flowers and palm trees are amazing here. It is a very beautiful place to visit.

Til tomorrow.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Advertisement

Postby catfreak » Wed Sep 02, 2009 8:48 pm

Prof8,

I am not sure if is the Tysabri or the Tesla # of the MRI machine. I have a T3 MRI every six months and I think this may be a T2 machine here. I will ask tomorrow.

Or does anyone know the Tesla # of the MRI machines here at Stanford.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby CureIous » Wed Sep 02, 2009 9:09 pm

:)
Last edited by CureIous on Sat Oct 03, 2009 3:28 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1210
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby catfreak » Wed Sep 02, 2009 10:35 pm

Mark

I had the MRI Mrv at 7am, the venous Doppler at 930 and the blood draw right after this. So the UT has not been eliminated at this point. But the blood draw is done before the surgery .

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby ErikaSlovakia » Thu Sep 03, 2009 1:09 am

That's great news! I am so happy for you :D
Good luck again!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby Arcee » Thu Sep 03, 2009 6:47 am

Cat, I was so happy to hear that you got around easily on the Caltrain and Marguerite. Oh yeah, and that you also have something Dr. Dake can fix :D

Really though, very exciting for you! You sound in excellent spirits, and I hope the procedure and recovery goes swiftly and smoothly for you. Will keep checking in to hear how you are doing.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
User avatar
Arcee
Family Elder
 
Posts: 338
Joined: Wed Jan 05, 2005 4:00 pm
Location: Massachusetts, USA

Postby mormiles » Thu Sep 03, 2009 7:43 am

Cindi, I'll be holding your hand and your new handbag for you in my mind today. Can't wait to hear later how it all went down. Stay calm and hopeful,
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
mormiles
Family Elder
 
Posts: 215
Joined: Tue Mar 07, 2006 4:00 pm
Location: 75098

Postby CureIous » Thu Sep 03, 2009 8:49 am

:)
Last edited by CureIous on Sat Oct 03, 2009 3:27 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1210
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby catfreak » Thu Sep 03, 2009 9:05 am

cureious,

I had time after the MRI and UT to go get Blood Draw and then ate lunch. We were still early for Dr Dake. I gave us time to get to know Angela and Alex, they are wonderful.

I am waiting in admitting right now, they have some sort of computer glitch. My husband is nervous and I am ready to get the show on the road.

Until this afternoon.....

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby catfreak » Thu Sep 03, 2009 6:16 pm

Today has been a long day.am in recovery room on my iPhone. Not sure yet what all he did. Crazy ride should be in a room soon. Thx for all your good wishes. I think he found some wierd stuff. Will post later!

Cat

I
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby Jamie » Thu Sep 03, 2009 6:17 pm

Rest well Cat !
User avatar
Jamie
Family Elder
 
Posts: 596
Joined: Mon Jan 07, 2008 4:00 pm

Hi Cat!

Postby radar22 » Thu Sep 03, 2009 6:43 pm

Good Night. Sleep well. I'm glad you had an opportunity to post. Now, I hope we both sleep well.

Still thinking of you AND that fabulous purse!! You did SO WELL on saving with transportation, etc. I think you could get the purse and it would all even out in the end, don't you think?! :lol:

I'll check on you tomorrow! Sleep Well.
User avatar
radar22
Getting to Know You...
 
Posts: 21
Joined: Tue May 26, 2009 3:00 pm
Location: Fayetteville Pa

Postby catfreak » Thu Sep 03, 2009 6:48 pm

Two great nurses Anna and Ruth.

BP is 117/74 never been that low.

My back is killing me from laying here! Flat!

Bored stiff!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 3:00 pm
Location: Mississippi

Postby Needled » Thu Sep 03, 2009 7:08 pm

Great to hear from you, Cat. So glad everything went well. Get a good night's rest, and we'll look forward to your posts, as always.
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 4:00 pm
Location: Connecticut

Postby CureIous » Thu Sep 03, 2009 7:16 pm

:)
Last edited by CureIous on Sat Oct 03, 2009 3:26 pm, edited 1 time in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1210
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service