CCSVI PreCongress Meeting- September 7, 2009

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby fernando » Wed Sep 09, 2009 7:41 am

Sorry Sharon to hear that. Hopefully your daughter will never develop anything thanks to the procedure.

Mi daughter is only 3 years old. She is a happy and super healthy girl but I cant' help worrying about her and the future.

Fernando
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Postby Loobie » Wed Sep 09, 2009 8:32 am

I get those feelings all the time as there is all that press out there saying "father's are X times more likely to pass MS on".
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Cheers conference report

Postby CNClear » Wed Sep 09, 2009 8:59 am

Cheer...you deserve the title 'Dr.' in front of your name! Your copious notes from Italy made my day...no, my week...my year!!! I am getting my paperwork together to send to Dake today! Thank you so much!!!
:D :D :D :D
<div>Lisa aka, CNClear<br />RRMS dx 1983, age:50<br />Got my dates for Stanford: Dec 8th & 9th!!</div><br />
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Postby javaneen » Wed Sep 09, 2009 5:32 pm

oh yeah Cheer..you're the best! I am printing out this also to read before bed. I will sleep good tonight and wake up with a big smile on my face. Thanks Cheer!
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Remyliatin

Postby pgy » Thu Oct 22, 2009 10:19 pm

Question to CheerleaderAbove

Dr Savi said

He will give proof tomorrow that there is plasticity and remyelination in the CNS and the Liberation procedure have proven to activate remyelination in the CNS as shown by MRI.

I can't see anywhere what proof was given.
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Re: Remyliatin

Postby cheerleader » Fri Oct 23, 2009 6:08 am

pgy wrote:Question to CheerleaderAbove

Dr Savi said

He will give proof tomorrow that there is plasticity and remyelination in the CNS and the Liberation procedure have proven to activate remyelination in the CNS as shown by MRI.

I can't see anywhere what proof was given.


The next day Dr. Salvi (the neuro from Bologna) spoke/did a power point and referred to his and Dr. Zamboni's paper regarding the larger groups of MS patients treated with the Liberation procedure which is in press, as is the smaller group including Buffalo patients. Both of these papers have the remyelination "proof" as documented on MRI. The plasticity proof was in abatement of symptoms in RRMS, lower EDSS numbers and even disease reversal in progressive patients at 18 months, taking longer to show the effects of the Liberation procedure- but still an improvement in disease course. The numbers, facts and MRI pics are in the papers...they were not given at the congress. Make sure to read my notes from full meeting on the research sticky.
stay tuned-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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