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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby chrishasms » Tue Sep 08, 2009 11:16 am

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Last edited by chrishasms on Sat Dec 05, 2009 5:27 pm, edited 1 time in total.
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Postby mrhodes40 » Tue Sep 08, 2009 11:31 am

In the regimens forum I have "Marie's stents CCSVI" and document my recovery there. would that work if everyone did it?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby chrishasms » Tue Sep 08, 2009 11:39 am

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Postby Arcee » Tue Sep 08, 2009 12:29 pm

Well we did have separate postings for people under the CCSVI forum but the 'patients log' thread confused that, I think. Personally, I like the idea of the separate logs, but hope we keep them in the CCSVI forum so all this news is easily accessible in one place. For example, when I access away from my desk, I just click on the CCSVI forum and explore from there so I often miss Marie's posts in the 'Regimens' area. And maybe the patients log can revert back to being for the basic baseline information, or maybe it is not necessary. Just my opinion...
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby catfreak » Tue Sep 08, 2009 1:38 pm

I just posted mine separately.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Jamie » Tue Sep 08, 2009 4:40 pm

I must admit I only look in this part of the forum nowadays so would miss things in the general part.
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Postby Rokkit » Tue Sep 08, 2009 5:22 pm

There's another part of the forum? :wink:

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Postby CRHInv » Tue Sep 08, 2009 5:33 pm

[There's another part of the forum?

Rokkit]

That is what I was thinking!! I am glad to hear that you are on the same page, (literally!) as me.

I think this is a great idea.
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Postby CNClear » Wed Sep 09, 2009 12:54 pm

What other part of the forum?????
<div>Lisa aka, CNClear<br />RRMS dx 1983, age:50<br />Got my dates for Stanford: Dec 8th & 9th!!</div><br />
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Postby mormiles » Wed Sep 09, 2009 1:46 pm

I'm all prepared to be the snotty "good girl." Steve's imaging and intervention dates are September 28 & 29, and I've already prepared the first post of his individual treatment/recovery thread on MS Word. The opening post will include his MS history and symptoms (which should be handy for reference when anyone reads the treatment and recovery info). My intention is to make the prepared post within a few days prior to the trip to Stanford.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
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Postby CRHInv » Wed Sep 09, 2009 2:09 pm

Why is that snotty? It sounds really helpful to me. Am I missing something?
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Postby radar22 » Wed Sep 09, 2009 2:54 pm

I agree. This forum. They should be kept together. Good Idea :idea:
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Postby mrhodes40 » Wed Sep 09, 2009 3:20 pm

I'm all prepared to be the snotty "good girl."


Well OK teacher's pet showing everyone how to be prefect :wink:

you aren't excited are you?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby mrhodes40 » Wed Sep 09, 2009 3:22 pm

will it be OK if I keep to my regimens thread? would you like me to add a tickle here 'added to my regimens?" I'm the queen of blab-o-rhea I need acres :oops:
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Jamie » Thu Sep 10, 2009 12:49 pm

marie, yes please link when its updated.
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