Rokkit wrote:Do you know what kind of treatment (stents/balloon/etc)?
you can find it in my posts, but again:
This information might important to all of you.
I have received another e-mail from Dr. Simka, it is just a part of it:
"As far as treatment modalities are concerned - there was a big discussion on that in Bologna, and as far as jugular veins are concerned a simple baloon angioplasty is not a good option, since ~50% of lesions reocclude with simultaneous MR relapse. There were suggestions to re-baloon such occlusions, but regarding the fact that a relapse means new damage to the brain, it does not seem wise. Dr. Dake from Stanford is for stenting, and it seems to be the only good option for highly localized lesions. But is the middle part of neck and in a case of inverted valve open surgery is probably the best choose (but, there are no idata for that at the moment, Zamboni's team has operated on only 5 patients, and all were with reocclusions after balooning).
It means he will do the open surgery on my right jugular. We still do not know what and where the problem is on my left side.
As soon as I know more I will post it.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse