Treatment in Italy - When?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Treatment in Italy - When?

Postby fernando » Tue Sep 08, 2009 1:55 pm

Besides being Argentinian, I have Italian citizenship (Grazie tante Nonno) so it would be natural for me to go to Italy to get the treatment.

So, does anyone know or imagine or estimate when a treatment will be available there? As far as I know the procedure would be free for Italian citizens (?)

Thanks

EDIT: Changed the subject to reflect the contents better.
User avatar
fernando
Family Elder
 
Posts: 228
Joined: Wed Jul 15, 2009 3:00 pm
Location: Argentina

Advertisement

Postby Ernst » Sat Sep 12, 2009 10:22 am

I've been thinkin the same and planned that I'll write to Italy, if it's possible that foreign could come to operation? And if it's possible - how much would it cost? When I told my wife about the plan - she was almost packing her suitcase.
At the moment at least something is happening here in Finland - vascular guys and neuro's have had conversations about CCSVI and they are discussing if they begin to make their own research. Hopefully they start the reseacrh. With this knowledge I would be quite surprised if they don't - the evidence looks so strong and clear.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
User avatar
Ernst
Family Elder
 
Posts: 294
Joined: Sat Nov 15, 2008 4:00 pm
Location: Rovaniemi

Postby CureOrBust » Sat Sep 12, 2009 8:41 pm

I think Dr Simka is also setting up a treatment option in Poland, which would be considerable cheaper than the current projected costs of getting it performed in America without insurance.
User avatar
CureOrBust
Family Elder
 
Posts: 2908
Joined: Wed Jul 27, 2005 3:00 pm
Location: Sydney, Australia

Postby ErikaSlovakia » Sun Sep 13, 2009 12:20 am

I think so, too.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby Rokkit » Sun Sep 13, 2009 3:30 am

Do you know what kind of treatment (stents/balloon/etc)?

Rokkit
Rokkit
Family Elder
 
Posts: 669
Joined: Tue May 19, 2009 3:00 pm

Postby ErikaSlovakia » Sun Sep 13, 2009 4:28 am

Rokkit wrote:Do you know what kind of treatment (stents/balloon/etc)?

Rokkit

Hi Rokkit,
you can find it in my posts, but again:
This information might important to all of you.
I have received another e-mail from Dr. Simka, it is just a part of it:

"As far as treatment modalities are concerned - there was a big discussion on that in Bologna, and as far as jugular veins are concerned a simple baloon angioplasty is not a good option, since ~50% of lesions reocclude with simultaneous MR relapse. There were suggestions to re-baloon such occlusions, but regarding the fact that a relapse means new damage to the brain, it does not seem wise. Dr. Dake from Stanford is for stenting, and it seems to be the only good option for highly localized lesions. But is the middle part of neck and in a case of inverted valve open surgery is probably the best choose (but, there are no idata for that at the moment, Zamboni's team has operated on only 5 patients, and all were with reocclusions after balooning).
Marian Simka"

It means he will do the open surgery on my right jugular. We still do not know what and where the problem is on my left side.
As soon as I know more I will post it.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

CCSVI/PPMS

Postby spiff » Sun Sep 20, 2009 8:19 am

What does all this mean to PPMS suffers????
Please NO MEDICAL LINGO!!!!!
Spiff
User avatar
spiff
Newbie
 
Posts: 5
Joined: Tue Nov 30, 2004 4:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service