I believe Lew had a bad relapse on Tysabri and that was his reason for stopping. He was talking about doing LDN, I am not sure if he went forward with that.
I, on the other hand, have been relapse free since Tysabri. I don't like the way I feel for the 1st week after the infusion but then again, relapse free.
I think it's a hard decision to make. Most CCSVI patients seem to be continuing a treatment of some kind. I will not stay on Tysabri over 2 years, maybe 18 months. This was #9 for me and if I stay on it another year we will know more about the positive effects of the CCSVI Intervention and I will either get off the Ty and choose a oral med or just go med free. Which actually sounds the best to me.
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.