radeck wrote:It just still seems a bit too good to be true, after 9 months of exploring lots of close-to-dead ends, reading dozens of research papers, not being assisted much in my research by MS specialists. I really appreciate your guys willingness to think about this stuff in detail.
Rokkit wrote:radeck wrote:It just still seems a bit too good to be true, after 9 months of exploring lots of close-to-dead ends, reading dozens of research papers, not being assisted much in my research by MS specialists. I really appreciate your guys willingness to think about this stuff in detail.
I feel the same way. Especially about the spinal/bladder stuff. Although MRI doesn't show it, I almost certainly have a sacral lesion (due to a specific reflex that's missing down there). Now, I'm expecting to go to Stanford and find I only have jugular issues and I'll be faced with deciding whether to go forward with treatment or not. It's a long way from the jugulars back around to the sacral spine, just doesn't seem right.
vein problems only perfect azygos veins can have sacral spine symptoms that subside with jugular ballooning/stenting, is crucial to the CCSVI paradi
mrhodes40 wrote:What are sacral symptoms?
radeck wrote: (I still believe that auto-immunity is the final but crucial problem in a chain of problems, otherwise certain immune-suppressant wouldn't completely halt MS) in a micro-bleed in the sacral part of the spine, i.e. at the very bottom of it.
I have never had any spinal lesions and I definitely have loss of function in my legs and feet including sensory losses. You can have only brain lesions and only jugular issues (as I do) and still have foot numbness and leg dysfunction.
I have never had any spinal lesions either (2 MRI's of the spine) and I have lots of numbness and spasms in my feet and legs. I also had a urinary tract infection and felt no pressure or pain also bowel problems.
Thanks for sharing this. I take it from your writing that these haven't gotten better yet after the stents?
mose wrote:radeck wrote:
what immune-supressants completely halt MS?
In the early stages of MS, Steroids do a pretty damn good job, for most, temporarily. (yes a lot of escape clauses...)mose wrote:what immune-supressants completely halt MS?
There is that study that found long term pulsed steroids actually provided major improvements in PPMS patients EDSS scores. It was a small study, but very promising. I am actually using monthly pulsed oral steroids, and I think it has improved my EDSS some. Who knows why, but I like the idea you presented, I have not read it anywhere before.radeck wrote: If you just stop this for a short term (i.e. through steroids) it is not enough to heal and go turn back the time 20 years.
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