mrhodes40 wrote:I have very much enjoyed reading this wonderful synopsis of the conference. Thank you is not enough to express the gratitude that I feel towards you Cheer for undertaking this expense and effort.
The "romantic" notion of going to Bologna cannot be anything like a 14 hour flight with Norwegian bikers, followed by a small gelato instead of dinner then off to bed, the next day a dinner meet and greet that was entirely documented by you, a post to us then a quick sleep and a long day of conference, a third sleep then 14 hour fly home again made more interesting by compiling the notes from the conference. I mean, that ain't no picnic in Bologna. It was good of you to do it for all of us.
The thing that struck me was how many experts from other disciplines have already been aware of and working on this model, for example, the work of the geneticist who mentioned the HLA types and the expanded genetic codes that are related to the venous malformation. It made sense that this was true given CCSVI, but I expected someone to look at that sometime later, it blows me away that this type of work is already begun.
We are further down the path than I imagined and it fills me with gratitude.
Thanks, Marie...I wish you were there with me. I know you would have been hanging on every word next to me
and you would have loved meeting all the docs in person.
It was a grueling few days, but I felt honored to be there, and realized it was a culmination of all the research and searching of the last couple of years....to see it come together was magical.
I was impressed that every single doctor that spoke seemed to place another missing piece of the puzzle...from the congenital and genetic evidence, to the evidence of what really goes on in the MS brain as shown with SWI technology...all of these different fields said that they were surprised that NO ONE HAS EVER STUDIED THE JUGULARS AND VENOUS RETURN BEFORE in relation to neurological disease. Everyone kept scratching their heads and saying, "we need a birds' eye view!" or "We need to step back and study the venous system."
And of course...this is what we've been crying out for awhile on here. Look beyond on the brain!!!!! The body is one organism!!!! So that part felt really validating.
We are much further down the path in research, you are right. However, it seems we are just beginning in explaining this, as evidenced by all the questions I'm getting...
I would recommend that all folks who are new to the forums, please read the big CCSVI thread first...many of the questions are answered there, and it's like reading a novella...you can see how we all learned about CCSVI together. Also, try the search function to find a topic of interest, like "Natural chelator" or "Stanford + Dake" to find some of the items already covered.
I'm taking the weekend off (got the Emmys tomorrow, wish Jeff luck!) so if you don't hear from me...I'll come back 'round in a few days. But really, use that search function, and read all you can...