A/B have swelling & water retintion in legs & feet p

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Will you pursue the CCSVI Intervention since more news has been released?

Yes - very excited when is the plane boarding??!!!
5
25%
Yes but not immediately still being causiously optimistic.
12
60%
No, not until all info is published and I read and understand.
0
No votes
No way Jose no docs touching my Jugulars!!!
2
10%
Y'all are a bunch of crazies jumping in the next band wagon that comes along!!!!
1
5%
 
Total votes : 20

Postby mrhodes40 » Thu Sep 10, 2009 4:54 pm

Edema like that could be a sign of Congestive heart failure. Which concerns me about this procedure.


Hi GG, Precisely how would a stent cause congestive heart failure? Please explain what your concern is so we can discuss that idea since you put it on this thread.

Was holly's stroke a complication from this procedure?

NO. It was not. She had a hemmorhagic stroke which type is only 15% of strokes and usually a genetic weakness of some type in the arteries. Holly's mother died of a hem. stroke too. When the weakness in the artery gives way and breaks open for some reason, the blood leaks into the brain causing the stroke. BECAUSE SHE WAS ON COUMADIN, Holly had a bigger bleed than she would have had, but the location of her bleed was such that she would not have been likely to survive anyway because it was in her brain stem.

If a person was on coumadin and did not get tested to keep their INR in the therapuetic range (Holly was therapeutic and had been tested the day before) and if the INR was very high potentially it could make a person at risk for a hem stoke. BUT THIS WAS NOT AT ISSUE IN HOLLY.

I want to make sure we have no misunderstanding perpetuated in the forum here. There are things to be concerned about, like making dang sure you get your blood tests as ordered and follow up on changes in medication (my coumadin was stable for 4 weeks then we went on a crazy ride changing dose once or even 2 times a week)...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby guitarguy » Thu Sep 10, 2009 5:24 pm

mrhodes40 wrote:
Edema like that could be a sign of Congestive heart failure. Which concerns me about this procedure.


Hi GG, Precisely how would a stent cause congestive heart failure? Please explain what your concern is so we can discuss that idea since you put it on this thread.

Was holly's stroke a complication from this procedure?

NO. It was not. She had a hemmorhagic stroke which type is only 15% of strokes and usually a genetic weakness of some type in the arteries. Holly's mother died of a hem. stroke too. When the weakness in the artery gives way and breaks open for some reason, the blood leaks into the brain causing the stroke. BECAUSE SHE WAS ON COUMADIN, Holly had a bigger bleed than she would have had, but the location of her bleed was such that she would not have been likely to survive anyway because it was in her brain stem.

If a person was on coumadin and did not get tested to keep their INR in the therapuetic range (Holly was therapeutic and had been tested the day before) and if the INR was very high potentially it could make a person at risk for a hem stoke. BUT THIS WAS NOT AT ISSUE IN HOLLY.

I want to make sure we have no misunderstanding perpetuated in the forum here. There are things to be concerned about, like making dang sure you get your blood tests as ordered and follow up on changes in medication (my coumadin was stable for 4 weeks then we went on a crazy ride changing dose once or even 2 times a week)...



Stenting the jugulars increases blood flow, increased blood flow will have an impact on our bodies. I would think someone with hypertension or even a heart problem, it might be an issue. maybe she needs her meds adjusted.

increased blood flow with someone where the arteries might be a little stiff could complicate things. Hypertension is often caused by the arteries being a little stiffer and prone to clogging etc.


Sorry I said anything, was just concerned. a 10 pound weight gain with edema in such a short amount of time is alarming.
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Postby chrishasms » Thu Sep 10, 2009 6:42 pm

123
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Postby catfreak » Thu Sep 10, 2009 7:11 pm

Hey everybody,

Sitting with my feet up. I feel fine. I think the whole problem was that I was NOT taking my BP meds for the last week since my BP was lower. I was afraid it would bottom out on me.

I promise, promise, promise I will go first thing in the morning if the swelling is not down or goes down and starts again after I get moving around.

I am very stubborn I know, sorry guys. :oops: :oops: :oops:

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby chrishasms » Thu Sep 10, 2009 7:47 pm

123
Last edited by chrishasms on Sat Dec 05, 2009 6:25 pm, edited 1 time in total.
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Postby chrishasms » Thu Sep 10, 2009 7:51 pm

123
Last edited by chrishasms on Sat Dec 05, 2009 6:26 pm, edited 1 time in total.
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Postby catfreak » Thu Sep 10, 2009 8:32 pm

Chris wrote:
"You can't have any pudding if you don't eat your meat!"


"How can you have any pudding if you don't eat yer meat?"

I did this poll for my own entertainment. I am surprised that more people haven't marked the crazy bandwagon answer! Only 1 so far!

It's OK if someone thinks I'm crazy because I am the only one in charge of my health. We have to be our own advocate - you know that better than anyone here!

Cool!! :lol: :lol: :lol:

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mrhodes40 » Thu Sep 10, 2009 9:16 pm

I am glad you asked the question because if you think it, someone else does too so it is worth mentioning how things work.

improving Blood flow is not going to cause CHF just because you opened up the veins so the blood you pumped out could get back. If anything it may help by reducing back pressure.

You could cause a problem by giving someone an IV with a whole bunch of extra fluid in their body because you'd give their heart too much to do, the same thing could be accomplished by giving too much salt so they retained fluid and thus increased the volume of the blood.

But opening up the vein so the circulation is better is not increasing the volume of the blood. So you can see there is a difference there.

That having been said....CAT...CAT....Cat....tsk tsk. Get thee checked out. Swollen legs 10 pound gains not good.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby catfreak » Thu Sep 10, 2009 10:26 pm

Yes M'aam!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby whyRwehere » Thu Sep 10, 2009 10:28 pm

So you are still up very late Catfreak...what time is it there? I just woke up thinking I would have to wait all day to see how you were doing!
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Postby AndrewKFletcher » Fri Sep 11, 2009 12:53 am

Type the name of each drug you are prescribed into google adding contraindications and / or side effects just to make sure you are not having a medication side effect Cat. It could be an adverse reaction to a combination of drugs.

Some people react to certain drugs like a person with an allergy to peanuts or a wasp sting.

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Re: swelling & water retention in legs & feet

Postby NHE » Fri Sep 11, 2009 1:41 am

I know that there are some here who will disagree with me, but it just seems counterintuitive to me to be sleeping on a downward angled bed when you have such swelling going on. I think that most people would advise to put your feet up to help alleviate swelling.

NHE
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Postby catfreak » Fri Sep 11, 2009 6:46 am

Goodmornng,

OK, Legs swelling is down, Feet still a bit swollen, weight down 4 lbs (woohoo). :) :) :) :) BP 123/76 Meds going their job.

NHE wrote:
I know that there are some here who will disagree with me, but it just seems counterintuitive to me to be sleeping on a downward angled bed when you have such swelling going on. I think that most people would advise to put your feet up to help alleviate swelling.


NHE, I agree with you, it does seem counterintuitive to me also. But it's the only bed in the house right now.

whywerhere wrote:
So you are still up very late Catfreak...what time is it there? I just woke up thinking I would have to wait all day to see how you were doing!


Why, It was 10:30 or 11:30 pm, not really sure. For some reason my brain is still on California time.

AndrewKFletcher wrote:
Type the name of each drug you are prescribed into google adding contraindications and / or side effects just to make sure you are not having a medication side effect Cat. It could be an adverse reaction to a combination of drugs.


Andrew, Will do that ASAP. Thanks!

Thanks everybody, you guys are great! You help me keep everything in perspective.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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