For those of us wondering, what can we do? There are many things available to us now.
(Maybe a sticky, NHE? I'll let you make the call...)
1. What we can do to find a doctor to treat CCSVI:
If you are an MS patient or care taker, and want to bring CCSVI information to your doctor- go to
Every single bit of Dr. Zamboni's research is available there, for free, to print out under the publications section. Go to the press section and print out the press release from the Bologna conference.
If you live near a major university, call this university, get the name, number and address of the chief neurologist and the chief vascular doctor there. Tell them BOTH you are sending them the research, and you want them to talk about it together about CCSVI. Hold them accountable to dialogue.
Dr. Dake will be having a big meeting with the neurology and vascular departments at Stanford next week. After Bologna, we all believe that COOPERATION is key. Spread the word, hold the doctors accountable-they need to work together for MS patients worldwide.
2. What to do for your own health and well-being-
The evidence is in. The vascular system is connected to MS. If you are an MS patient, you must live life as though you have survived a heart attack or stroke. This means living a life of "cardiovascular health." There are many rules for this type of life, and all apply to MS.
-No more smoking (it advances MS progression)
-No bad fats (stay away from saturated animal fats)
-Exercise...it keep the blood moving and promotes vasodilation
-Limit stress. Learn how to deal with daily frustrations thru meditation, prayer, yoga, and deeeeeep breathing.
-there are many books for cardiovascular health, written by Drs. Weill, Dean Ornish, etc. All would be applicable for you, too.
- If you want to take this further thru supplementation- read the Endothelial Health program at
link to Facebook Page for CCSVI
The Cardiovascular Cure by Dr. John Cooke would also be a good reference book
-Although these measures do not remove a stenosis, they can mitigate some of the damage- until endovascular procedures are available. Every little bit counts.
3. How to spread the word in your own community and beyond:
This is going to be a true grassroots movement. It will mean people talking to each other, to explain a new paradigm.
-If you have had the stenting procedure, and want to talk about it, maybe start a blog. Lew's excellent blog is a great example.
-Carry the information with you - and bring it to doctors' offices....pediatricians, eye doctors, even dentists! All see patients with MS, and believe me, all are interested. My Mom takes the info with her whenever she has a doctor's appointment
(love you, mom)
-write to medical bloggers, national docs with radio shows, local TV docs, whoever you think might be interested. Send them the official CCSVI packet to read.
It may seem overwhelming, but we are not alone. By working together, we can spread the word more quickly. By encouraging each other to live heart healthy lives, there are self-empowering ways to limit the damage of CCSVI. Everyone matters in this. Everyone can make a difference. We're all connected in this, and we all count.