only in MSer's?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

only in MSer's?

Postby Mike56 » Fri Sep 11, 2009 9:31 am

Is CCSVI only found in people with MS? If so, could the detection of CCSVI be used to help diagnose MS?

Anyone in Canada been tested or treated for CCSVI? Just wonderring how our medical plan deals with this, particularly in B.C..

Last edited by Mike56 on Fri Sep 11, 2009 9:55 am, edited 1 time in total.
User avatar
Family Elder
Posts: 105
Joined: Thu May 14, 2009 3:00 pm
Location: BC, Canada


Postby Jamie » Fri Sep 11, 2009 9:37 am

Hi Mike,

Yes, so far the congenital malformations of the CNS venous system has only been found in MS'ers and not controls, even people with other neurological diseases.

That's what we've heard so far anyway.

Agree that at the very least it should help with diagnosis.

User avatar
Family Elder
Posts: 596
Joined: Mon Jan 07, 2008 4:00 pm

Postby bestadmom » Fri Sep 11, 2009 9:53 am

Dr. Zamboni reported that he's been following children with stenosis in Sardinia for 20 years, and, to date, 90% of them have been diagnosed with MS. As another poster said, why wait another 20 years.

Logically this will be a diagnostic tool for early intervention since stenosis is congenital. I plan to ask Dr. Weinstock-Guttman about having my two daughters tested - they are 12 and 16. I would want to have them treated well before they develop MS if they have stenosis.
User avatar
Family Elder
Posts: 722
Joined: Mon May 18, 2009 3:00 pm
Location: CT

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service