paulmur wrote:
marc, what I know is that my iron went haywire due to a genetic propensity for it to happen.I don't believe that aspect of my health was related to ccsvi or ms. But perhaps the HH appearing with the ccsvi condition may have caused the lesions I have.
I think the fact that iron deposits appear with other diseases may just mean there are other sets of factors that could add up to the same result.
I haven't had any ccsvi imaging. For all I know, my lesions were caused by my HH alone.
My lesion formed just as my iron levels peaked. Like i mentioned elsewhere, I only have one gene for hemochromatosis, but that is enough to raise iron levels. When I dropped my levels of iron by phlebotomy to more normal levels (easy for me as I wasn't particularly overloaded by doctors standards), my tiredness and fatigue disappeared instantly, in 24 hours. I didn't know whether to laugh or cry! I could have been free of it all two years ago, if my doctor had taken any notice of my "high iron levels" and got them down. They were only slightly above normal in ferritin measurements.
Now I find I have porphyria. A very very rare genetic disease. Yeah right! Doctors don't test for it because it is very very rare. My point is, it's not rare at all. It's prevalent in Scottish (me), Irish, and northern European bloodlines. Porphyria carriers react to iron, drugs (they love giving you those) contraceptives, and alcohol and makes your brain do strange things, just like MS. There must be heaps of genetic interactions going on. 90% of porphyria carriers never show a sign of it, but it will mix with iron or being on the pill or too much dairy produce or beef and whamo......You have MS, here take some more drugs.
Big pharma would crumble if this was all sorted out.
My son has it too, his diagnosis was autism/ADHD. My niece has it, her diagnosis depression, my brother has it, his diagnosis stuffed liver. My sister and I diagnosed with MS. It can all be fixed with phlebotomy, cessation of drugs/contraceptives and careful diet. No money in it for Big Pharma there. Hmmmmm......... Bad for the packaged food industry too, they put so many additives in, most food is a chemical cocktail these days. Every breakfast food is packed with extra iron, everything is highly preserved with nitrates and sulphites.
I was pretty healthy until I hit 45 and the iron had built up over the decades, then whammy.... My sister was injected with iron as a teenager, she got MS much earlier than I did, at 30 years.
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