avantitech wrote:Good news Folks,
I've had a consult with a Melbourne vascular surgeon who appears to be of the opinion that the markedly narrowed IJV and VV veins need to be addressed asap i.e. visualised via venography and possibly treated by balloon angioplasty......scheduled on March 4th.
The inverted valve is not being addressed as it is not an absolute necessity for daily living (and I am not a roulette pilot, trapeze artist or circus performer). In any case a working valve replacement is not available as yet.
It remains to be seen if or to what extent blood flow can be improved, but I remain hopeful that something positive will be achieved, normality restored at least.
I reiterate that we must emphasise this is primarily a vascular issue not an MS issue. Although there appears to be a strong correlation or association, causation is yet to be proved although substantial progress is being made as in the BNAC preliminary results indicate.
It may be that the narrowed portions of the vessels are too long to be successfully widened and if so then it will be difficult to have normal blood flow in my case. It may also be that the location of the narrowing precludes any action. Furthermore if the short lengths of the stenoses are indeed widened there is a 50% chance of restenosing within months.
I am happy to provide contact details and the VS is happy to be see more of us via GP referral but it may be wise to hold off having a procedure until I can get some feedback to you folks. Procedure is to be performed via Medicare at a public hospital.
nico wrote:lt amazes me that in all the furfore Prof. Zamboni's 'ccsvi' discovery has created, one simple fact is being consistentlty overlooked and hence, is threatening to derail the first positive news MS patients have ever received. Prof. Zamboni theorises that a narrowingv of EITHER the jugular vein in the neck AND/OR the azygos vein in the spine can lead to reflux, etc. Yet reporters etc have jumped on only the jug vein aspect. Wouln't this skew results? For all those being tested, PLEASE bear this in mind. cheers, Nico
Salvatore24 wrote:Looks like I'll be organising this scan to happen as soon as possible. Thanks to everyone that got the ball rolling.
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