nico wrote:hwebb wrote:Hi all,
I mentioned a little while ago that I was schedued for a cranial doppler today. I attended my appointment today, but all did not go as planned. The sonographer had a cranial probe...but it didn't seem to be sensitive enough. It could only probe the thinnest parts of my head - such as my temple - so he couldn't investigate suspected stenosis in other areas of my cranium (as hinted at in the MRV analysis). Also, I had forwarded the sonographer various information about the correct doppler technique via the vascular surgeon I've been seeing. The info didn't make it to the sonographer - who was very interested in this work, and helpful.
Anyway, I will stay in touch with the sonographer, and now have his direct contact details. He may be able to access a more sensitive probe in the future. I'll post if i ever have a successful cranial doppler.
There in currently only a single sonographer with the appropriate training and equipment to do a Doppler ultrasound of yr neck. Details have b een provided in previous posts. Also provided on the CCSVI Aust web page. Best of luck. cheers, nico
Downunder wrote:Oops, also meant to say, (from Dr. Haake)
We need to stop saying CCSVI is related to the etiology of MS. We need to tell them there is another disease out there called CCSVI and many MS patients have it.
avantitech wrote:Hi Salvatore,
Alas no - azygous vein not being imaged but maybe this can brought up with IR/VS if/when venogram investigation is to be performed.
Anybody have the latest figures for number of patients with positive results at Melb.Radiology such as blood flow anomalies, stenoses etc?
It appears that many of us have in common an inverted valve in the internal jugular vein either left or right.
However, let us stay grounded...as other TIMS members have already mentioned: in discussion with medical personnel the presence of any narrowed, stenosed or malformed veins should be diagnosed and treated as vascular abnormalities and NOT as a solution or cure for MS, until of course the requisite controlled trials have been completed and peer reviewed...
It seems to me that following any treatment for the vascular irregularities the auto immune reaction is still active and it probably would be a good idea to continue with any immune modulating medicatons for a good while longer.
avantitech wrote:nico a big Thank you and a hearty Well Done!
Hopefully the procedure will improve blood flow in my IJV's...but I don't like my chances for the vertebral veins...a bit too small for the probe...let's see what can be done in the hands of the good doctor.
I figure we'll need to:
ask the IR to check the azygous if possible during the venogram, which I believe is using fluoroscope for imaging rather than MR;
accept the other risk of the ballooning-only procedure i.e. restenosis within 18 months in 50% of patients as per original Prof. Zamboni's study, and then possibly consider doing another ultrasound scan and ballooning procedure if we get a relapse....
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