Just got my results, havent actually looked at them, however, I thought I would let people know.
Blacktown Hospital has a 3T Siemens MRI, and they now know of CCSVI's links to MS. They can perform an MRV and also an SWI, but are not currently practiced at performing Dr Haakes protocol. To expedite things, I told them I was ready to accept that it was a "trial", and forgo the "time of flight measurements" etc etc specific to the protocol. I just wanted to see my veins!
I had a referal from a Neurologist, and they weren't sure about it, but it ended being covered totally by Medicare. I can't say that this will be the case in the future. I was originally going to get it performed under a referral from a GP, and they were willing to do it, just that I had to cover all the costs. Wierd considering normally I have to pay something just from an MRI
I was originally speaking to two radiographers there that performed the scans, but the report was written by a third Dr. The feeling I got from his writtings, is that he appears more than open to accept further instructions from my neuro regarding further scanning.
So, in summary, Blacktown Hospital is somewhere you can get an MRV performed of your Jugulars and Azygous, as well as an SWI, on a 3T MRI, now, with a referral
. I think they were happy to do mine, as I always told them I understood that this was all in trial, and I had no expectations of success in the first attempt. When I rang to find out if my results were ready, when I told them my name, even the girl on the phone knew straight away I was the one for CCSVI, so it must of got some "airplay" in the office.
My scan? the report doesn't mention any specific "stenosis", however there is some other strange stuff like differences in IJV diameter, and a "small focal outpouching measuring 9mm across laterally at the base of the right IJ vein"