I have already asked my doctor for a referral and because she has never heard of CCSVI or seen that it is a recognised condition in her medical circles, let alone it's association to MS, she told me she couldnt give a referral as there are no 'indications' or immediate reason for investigation. she was VERY weird about the whole thing.
After I posted this, i realised that this image is more significant than I first realised. For example, the image is from a series taken about every 20degrees rotation. So, the image is probably not of the vein at its thinnest. Also, I would guess that the image was taken during the moment when the vein was under its greatest pressure, and hence would be more "pumped" than what it is at other times; ie still under pressure, just not the highest. Also, looking closer at the following images in the series, the vein actually appears to be getting even thinner, but it is harder to distinguish it from the other vessel it appears to be going around. did I forget to say Who-hoo!CureOrBust wrote:OK, had an initial glance through a lot of the images, and all I could see was the below possible issue. But we are not talking anything too outstanding compared to others.
I asked my GP this same question, and he said it was only of the blood within the vessel.CureOrBust wrote:Does anyone know if an MRV shows the outside diameter of the vein or only the blood flowing within the vein?
seeva wrote:HI Members I had my last appointment yesterday with my neurologist DR. STEVE VUCIC at the westmead M.S CLINIC IN WESTMEAD HOPITAL. He is now fully
supporing the CCSVI LINK TO M.S.Now he ready to send me any examinations i want. he has completely changed.He is send me to blacktown hospital for MRV exanination. if any stenosis are found in my neck or head veins then he can arrange a V.S in westmead hospital to do the liberation procedures.He all redy arrange a v.s who can willing to do the procedure.
SO IS VERY GOOD NEWS.If any one need to see DR.STEVE please contact
THERESE BURKE on 0298457997. phone early morning to her.I think one of our member CURE must have met DR.STEVE and gave the BLACKTOWN HOSPITAL MRV DETAILS . Thanks for his hard work.
Today MY FRIEND AND I had our trail doppler examination with DR. PAUL THIBAULT at his medical centre in newcastle. One of his technician and DR.PAUL were done the examinations.He found both sidesIJVS have reduced blood flow. But he like to check with his sonographer before his final report to me in two days time.For my lady friend he found the same result but her aztgos veins have some venous stenosis problems. she suffering from SPMS for last 24years. Her final result will be send her in a two days time.DR. PAUL is very helpful man.He already arrange a interventional radiologisist in ST' Vincent hospital to do the procedure. If all goes as planed then very soon he will setup a spical clinic in SYDNEY for this purpose.
From your posted results and my non-trained medical eye on Zamboni's doppler studies, Dr Julie Gregg is not performing the whole doppler / ultrasound protocol as presented by Zamboni. Additionally, Zamboni's and your Dr's protocol appears to only look at the jugular. Ultrasound has a limited view around the head area due to bone etc.warrenkole wrote:The report came back as normal on all counts.
Looking at my figures, it looks like my Right IJV is abnormally large compared to my left IJV which is below normal.
Does anyone know how they come up with a diagnosis of stenosis? Do they look at only the IJV's or the Vertebral area results aswell?
I'm keen to have an MRV done either in Melbourne or in Sydney to see if anything else shows up.
avantitech wrote:Good news Folks,
I've had a consult with a Melbourne vascular surgeon who appears to be of the opinion that the markedly narrowed IJV and VV veins need to be addressed asap i.e. visualised via venography and possibly treated by balloon angioplasty......scheduled on March 4th.
The inverted valve is not being addressed as it is not an absolute necessity for daily living (and I am not a roulette pilot, trapeze artist or circus performer). In any case a working valve replacement is not available as yet.
It remains to be seen if or to what extent blood flow can be improved, but I remain hopeful that something positive will be achieved, normality restored at least.
I reiterate that we must emphasise this is primarily a vascular issue not an MS issue. Although there appears to be a strong correlation or association, causation is yet to be proved although substantial progress is being made as in the BNAC preliminary results indicate.
It may be that the narrowed portions of the vessels are too long to be successfully widened and if so then it will be difficult to have normal blood flow in my case. It may also be that the location of the narrowing precludes any action. Furthermore if the short lengths of the stenoses are indeed widened there is a 50% chance of restenosing within months.
I am happy to provide contact details and the VS is happy to be see more of us via GP referral but it may be wise to hold off having a procedure until I can get some feedback to you folks. Procedure is to be performed via Medicare at a public hospital.
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