CCSVI - Aussie Action!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby avantitech » Tue Mar 09, 2010 2:24 am

Wishing you all the best for Friday Nico!!
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Postby Opera » Tue Mar 09, 2010 2:50 am

Kerri and Nico

Good luck and all the best
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Postby kezzcass » Tue Mar 09, 2010 3:02 am

avantitech wrote: Wishing you all the best for Thursday Kerri!!


Thank you so much!! I am looking forward to experiencing this for myself and feel much more at ease knowing you have had such a positive experience. Watch this space - will share the details as soon as I am able.

Kerri
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Postby kezzcass » Tue Mar 09, 2010 3:04 am

Opera wrote:Kerri and Nico

Good luck and all the best


Thank you. Can't wait now! Looking forward to sharing my experience with you all and hearing from everyone else coming up.

Kerri :)
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Postby elaine » Tue Mar 09, 2010 3:37 am

nico & kerri
wishing you both all the best
elaine
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Postby lodgernz » Tue Mar 09, 2010 4:18 am

Hi Val, fantastic news. I hope it goes well for you.
I'm in NZ and my friend has SPMS. We've been watching the developments in Oz, since it's not only close to us, but seems to be opening up to CCSVI more quickly than other places.
Are you able to post details of the clinic where you are having your venogram and possible procedure? I haven't seen it mentioned in any posts. Is it Dr Julie Gregg?
Another question, for any Aussies here who know about these things: Is it possible for Kiwis to be treated in Australia? Does anyone know of any potential problems with that? I'm assuming we're going private and paying.
Thanks a lot,
Roger
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DR.ZIVADINOV'S SYDNEY VISIT

Postby seeva » Tue Mar 09, 2010 4:32 am

HI MEMBERS PLEASE SEE THE RECENT REPLY I HAVE RECIVED FROM M.S SOCIETY AUSTRALIA ON PROFESSOR DR.ZIVADINOV'S VISIT TO SYDNEY. ALL HIS INFOMATIONS ARE OPASITE HIS PRESS RELEASE ON NOVEBER 2009 ABOUT HIS FINDIND FROM HIS BUFFALO TEVD/CCSVI STUDIES.
THIS IS THE LETTER FROM M.S AUSTRALIA
REGARDS
SEEVA

Please be advised that an update on CCSVI has been posted onto the MS Research Australia website. www.msra.org.au <http://www.msra.org.au/>

To view the update please click on the following link;
http://www.msra.org.au/news-media/news.php#Buffalo

Kind regards
:roll:
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Postby nico » Tue Mar 09, 2010 2:29 pm

avantitech wrote: Wishing you all the best for Friday Nico!!


Thanks so much for everyone's positive support! can't type much so l'll stick to 1 message BUT I REALLY APPRECIATE YR KINDNESS. cheers, nico
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Postby sus » Tue Mar 09, 2010 9:32 pm

Hi Nico and all the best for your surgery.

I am located in NZ and am hopefull that we get this surgery off the ground asap as well. :D
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Postby kezzcass » Thu Mar 11, 2010 3:00 am

Hi Everyone,

Quick update on my procedure with Prof T today. Thanks to Adolfo the Prof learnt that it is too long a process to check blood flow and just went straight to finding and treating stenosed veins. From go to woe it took just under an hour.

Checked RIJV and there was stenosis at the jugular valve (which was inverted). He ballooned this no probs. Then checked the LIJV and it was almost completely blocked at the inverted valve, in fact it was an 'anomaly' in that the blood had found a lesser vein to drain to. This stenosis was ballooned and it was a stubborn vein. Had to go to heavy duty balloon for a second go and finally opened the vein. Was good to see the blood (dye) running where it should.

Azygos vein is 'good and juicy' according to the Prof.

I have many more details and will post a youtube vid tomorrow. He permitted me to video the procedure and after editing I will post on youtube also. I won't comment on how my symptoms are just yet - want to let it all settle down a tad.

My neck is very tender and also all along the area where the wire was inserted. Hopefully feel a great deal better tomorrow.

Thanks for all your well wishes, Kerri :D
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CCSVI

Postby Opera » Thu Mar 11, 2010 3:13 am

Hi Kerri

Thank you for sharing your information. Very happy to hear that all went well.

Take care and let us know how you are going when you can.

Once again, all the best.
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Postby taxi » Thu Mar 11, 2010 3:16 am

Hi Kerri

Thanks for sharing the details. My wife is going in on Tuesday and we are very excited. (Well, I'm excited and I think she's a bit nervous). Good to hear that Prof T has reduced the time to one hour... will let her know that, I think she was worried about it, especially as she is super sensitive to cold.

Looking forward to hearing if things have improved for you.

Hey Adolfo, any updates from your end of town?

Cheers
Mark
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Postby kats » Thu Mar 11, 2010 3:27 am

That is great to hear Kerri that all went well for you.
Hope you have some major improvements to share with us in the coming days. Cannot wait for the video. It would be great to see.
Wish you a speedy recovery. :)
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mixed feelings

Postby hwebb » Thu Mar 11, 2010 3:36 am

am curious to see your videos...but a bit scared too as my procedure is on Wednesday. I was planning to not look at anything during the procedure...and take a sedative if offered. I want to pretend it's not happening. Not sure how successful this approach will be. My family want to come along to the procedure - they think it's a show!

Helen
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Postby elaine » Thu Mar 11, 2010 3:03 pm

fantastic news Kerri sound like all went well.Helen good luck for Wednesday im sure you will be fine.I have my first appointment with proffesor T on Tuesday hopefully he will book me in asap.Today we should all keep Nico in our thought's.
elaine
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